Video summary
Traveling with chronic health conditions like Hashimoto's thyroiditis, narcolepsy, rheumatoid arthritis, asthma, and allergies is entirely possible, but it demands a strategic shift from viewing illness as a limitation to embracing one's capabilities through mindful movement and proactive planning. The core philosophy involves advancing life forward despite physical challenges by preparing thoroughly in advance, which includes carrying all medications in carry-on luggage with necessary TSA documentation, bringing doctor's notes, and utilizing organized medicine vests or labeled boxes to ensure quick access during emergencies. This preparation extends to selecting comfortable gear such as compression pants to manage circulation and swelling, aisle seats to prevent knee cramping, blackout masks, eye drops, and hydration packs filled with electrolytes and filtered water to maintain energy levels throughout the journey.
Managing daily needs while on the road requires a flexible approach to diet, movement, and environment to mitigate common triggers like disrupted routines, fatigue, joint pain, and mental exhaustion. Travelers should bring their own food for long flights, research restaurants ahead of time to avoid cross-contamination, and consider carrying allergy cards translated into local languages when visiting international destinations. Staying active is crucial even during rest days; simple actions like stretching in airports, walking during flights, using resistance bands for seated exercises, and performing leg swings help prevent inflammation and maintain mobility. Additionally, choosing accessible destinations with elevators, wearing appropriate footwear for the terrain, and packing extra pillowcases to avoid hotel allergens can significantly reduce environmental stressors that might otherwise lead to a flare-up.
Successful travel also hinges on wise energy management and a supportive mindset that prioritizes rest as a productive necessity rather than a failure. It is essential to build buffer time into itineraries, avoid back-to-back connections, and schedule breaks before the body signals fatigue to prevent post-trip burnout. By practicing mindfulness to recognize early signs of a flare, avoiding perfectionism, and reframing expectations about bodily limitations, individuals can find joy in small moments such as balcony views or leisurely walks without feeling pressured to achieve an idealized vacation experience. This balanced approach allows travelers to celebrate small victories, manage stress through breathing techniques, and navigate fluctuating limits caused by factors like menopause without pushing beyond their current capacity.
Ultimately, the goal is to enjoy safe and fulfilling trips that enrich life rather than restrict it, proving that fear of flares does not need to stop exploration of the world. With the right combination of medical readiness, adaptive gear, self-awareness, and realistic planning, people with chronic illnesses can confidently embark on adventures ranging from standard vacations to ambitious endeavors like climbing Kilimanjaro or exploring safaris in various global locations. The overarching message encourages travelers to inform group leaders of their needs, know local resources, and actively seek joy in every moment while maintaining a flexible routine that honors their health journey. By embracing these strategies, the fear of travel is replaced by the excitement of discovery, ensuring that the world remains accessible and welcoming for everyone regardless of their health status.
Read the full video transcript
She said, "I'm going to be discussing
managing health conditions while
traveling." And so, in the intro, I'm
going to tell you a little bit about
myself. And just to preface this, each
slide could have been an entire
presentation on its own. So, this is not
going to be something that's comp
comprehensive. Um, but what I hope is
that you you're able to take little bits
and pieces um away from this
presentation and incorporate them into
your travel uh to make it just a little
bit easier. Um, so as already mentioned,
let me go over here.
I am a certified health coach. I have
been doing that um since 2017. Um,
focusing on autoimmune disease and I'll
tell you a little bit more about that in
a few. And before I even became a health
coach, um, fitness became a passion of
mine. Um, and that's also related to I
believe my chronic illness as to why I
took such an affinity to that. And so
the picture on the screen is me last
year in France um chilling on a hammock
next to a lake just enjoying life um in
spite of my chronic illness because I
hadn't had an opportunity to do that
before.
Fitness, as I mentioned, I've been doing
that since 2016.
Um I am certified in over 10 maybe more
different formats but the one that I am
most um getting the most pleasure and
also benefit out of now is teaching
fitness for limited mobility. Um, so
whether you'd be seniors, people who
have who have had surgery and are
recovering, um, people who are like
myself and have chronic illness and it's
that bell curve where too much exercise
can send you into a flare or too little
exercise can send you into a flare. I
work with all of the above and it's my
absolute favorite thing to do. I'm also
a health advocate. I have my own
nonprofit advocating for those with
chronic illness. Um, and then I'm also a
retreat curator. And so I have pictures
on the screen of my last trip um
speaking of tips or I have on my
compression pants on the plane um just
to make sure that my legs are
comfortable because it was a long
flight. And then that handy vest which
I'm going to tell you about in a little
bit as well, which was a lifesaver for
me um with such a long trip um and
layovers and you know different uh I
guess modes of travel that I had to
take. And then you'll see on the end, I
guess, me and the guy that was next to
me. Um, again, with with chronic
illness, you never know what's going to
go with your body. So, I always make
sure that I get an aisle seat. Um,
because if I don't in those little
seats, depending on where you're
sitting, um, my knees cramp up. So,
that's one tip I'm going to throw in
right now.
If you have issues with your joints, um,
and you can't get a a a seat that's in
first class or business class or, you
know, next to an exit door, um, make
sure that you get you an aisle seat so
you can at least move the legs around a
little bit. Yeah, it's a good trick.
Yeah, absolutely have to. And so, this
is me again. Um, I mentioned earlier
aside from all of those other things and
what this presentation is primarily
about is giving to to those of us with
chronic illness. I got diagnosed with my
first chronic illness in 2015. It was an
autoimmune disease by the name of
Hashimoto's thyroiditis that impacted my
joints. Uh, fatigue, brain fog, all of
the above. Um, it's an autoimmune
disease. Um then in 2019 uh four short
years later I got diagnosed with
narcolepsy type two. Um and a lot of
people aren't familiar with narcolepsy
or they only think that it is what they
see on TV and it's not like that at all.
If you see the face of narcolepsy this
is it. But I mean it's it medicated but
it's still it. It's still the place of
of narcolepsy. Um, but it was one of the
things that I think aside from all of
the other chronic illnesses and things
that I have that prevented me from
traveling before I was diagnosed
because I was like, if I'm going to go,
it didn't make any sense to me because
I'm always going to be asleep. So, it
was no sense to me even traveling
because I wouldn't get any benefit out
of it. But now that I have it more
managed um and I'm able to travel, uh,
again, I like to give tips to others to
help them through that journey. And then
four years after that, so if you can
find the pattern, every four years I've
been diagnosed with a different chronic
illness. In 2023, I was also diagnosed
with rheumatoid arthritis, which impacts
my joints. And thus the is seat tip that
I I have to get that I that I gave
earlier. So that's just a little bit
about me. Um and that's also too in
addition to having asthma, um allergies
of all kinds. And I think now I'm on the
edge or the cusp of per menopause, which
adds a whole other layer to all of that.
But I say all that to say that with my
experiences, my vast experiences with
all types of chronic illnesses um and
issues that just pop up randomly um I
understand the toll that it can take. Uh
the thought of planning a trip or going
on a trip with all of those things, but
I assure you it is possible. Um, if you
have chronic illness, you probably
already know there are a lot of
challenges. Um, too many for me to name
them all um, in this short presentation,
but I just wanted to kind of go through
a couple. Um, one of them was disrupted
routines. One of the things that has
helped me a lot with my chronic illness
is developing a routine. So, anything
that throws me off of that routine is
may cause an issue. Not always, but may
cause an issue. Whether it be, you know,
certain meals that I eat because I have
a specific diet. Whether it be my sleep
schedule specifically because I have the
narcolepsy and a lot of people with
chronic illness also have fatigue. So,
that can throw you off a little bit
depending on where you're traveling to
and where you're traveling from. And
then movement is a big thing for me. Not
that we want to work out all the time.
Sometimes we don't like working out when
we're not on vacation. But for me, the
lack of movement causes me to go into a
flare when I'm on a on a plane for
extended periods of time. That's going
to cause me to go into a flare. Um, and
so we need to be able to address those
and see what we what we can do to
mitigate that. Um, also environmental
triggers that can be anywhere. Um, it
could be you going from hot to cold to
cold to hot. That could be a trigger.
Um, the weather, it's raining here now.
That's a trigger even when you're not on
vacation. Um, it could be allergens. For
me, the whatever they use on hotel
sheets to wash the the industrial soap
that they have always causes me to have
a rash. So, I have to bring an extra
pillowcase with me so I can cover up
their pillowcase and so it doesn't cause
as much of a reaction. So, things like
that. And then the mental and the
physical exhaustion. And that's a big
one for those of us with chronic
illness. even without travel sometimes
it's not even the physical symptoms but
the mental toll it takes on you from
your mind wanting to go but your body
saying no. So how do we prepare for all
of that um as we travel because all of
it is important but all of them are also
um challenges.
So before you go preparing before the
trip is going to be one of the most
important things that you can do.
So first there is the medical prep.
those things that you don't think about
when you don't have that when you don't
have um chronic illness and have to
travel with medication and consider all
the things that you may need or all the
barriers that you may face when you're
traveling with the necessities that you
use on a daily basis. Um so do you have
a doctor's note for your medications if
that is needed? Some of them are liquid.
Um they have liquid restrictions. Um I
don't advise that you um that you I
advise that you take your medicine
medication on your carry-on so that it
doesn't get lost. Um because sometimes
that's what happens when you travel.
They lose your luggage and you want to
make sure that you have your your
medication. But what if it's a liquid
that's larger than what they than what
they allow on the plane? Do you have a
doctor's notes for that? Um TSA
documentation. All of those things that
you need again, but you may not consider
um if you've never traveled with chronic
illness before.
And then there's the packing essentials.
And I again I want to go back and say
when I was curating this or reframing
this presentation, there's all types of
different travel that you can do or
things that you can do while traveling.
At the beginning you me mentioned um I
believe it was hiking and trekking and
climbing mountains and all of that. You
right. So there there's there's things
that you have to do in a car or you're
traveling far on the road whether it be
on the plane. All of it's different and
you have to have different
considerations for all of that. Um so do
you have meds for that? And I'm not
talking about prescriptions, allergy
meds, stomach meds, um digestive meds,
because you know you if you go to a
different country or you're not eating
things that you normally eat, could that
cause food disturbances? Um I remember
on um my way to France, even though they
don't serve peanuts on the plane
anymore, I was sleeping on the plane and
I was awakened because I smell peanuts
of someone eating peanuts next to me.
like my throat started to close on the
plane
because I just smelled the peanuts that
were next to me. If I had not had my
allergy medicine,
Lord knows what would would have
happened. And then making sure that you
have comfort gear. And so for those two
things, I just want I just want to show
a couple of things that I use when I
travel. Um these are some medicine
boxes, small medicine boxes that I got
from um Amazon. The reason I like them
is because again with chronic illness,
everything is so unexpected. Things that
that may have never bothered me at home
now that I'm in a different environment
may pop up. So, you can get these off of
um Amazon and they have all of these
different labels that you can use so
you're not overpacking because we don't
want to carry too much in our luggage.
But just to be prepared, they have every
single medication that you can possibly
have, whether it be a leave, Pepsi, all
of that, where you can uniquely label
the medicine pack and keep it with you.
Oh, that's the other thing is I'm sorry.
I said that's a good tip for for
labeling because I also take medicine
with me, but I don't label it. I just
put it here. I have mine too when always
in my bag, but without labeling just
Yeah. I when I found those it was it was
it was a game changer for me. Yeah. Just
like them. Oh yeah.
First aid kits everything. Visine for my
eyes because again when I sleep on the
hotel pillows my eyes always turn red
and I know it's from the chemicals that
they're using to wash the sheet. And I
understand I want the sheets to be
clean. Um but they just bother me. And
so I need to I need to take my extra
pillowcase to cover the pillow and then
also bring all of the extra medications
that I may need. The other thing now it
may not be fashion forward. You could
you could dress it up. It's up to you.
But for me it was a game changer because
again I was on on the plane seat belt
light on. I couldn't move. I needed to
have access to my medications. They were
in my carry-on either above the in the
overhead bin or under the seat. I found
this useful.
I don't know if I got this off of
Pinterest or not. This is a vest with
multiple pockets.
So, I mentioned earlier that I have
asthma. So, I have one pocket for my
passport, one pocket for my, you know,
in my ID. I have maybe a snack in this
one for the plane if I need it. I have
my medications. I have my phone. I have
my earbuds. I have my eye mask. I can
carry that on me. And I'm not going to
go over in my luggage because they're
going to charge me extra if my if my
luggage is too heavy or I have too much
stuff. It's right there with me in my
pocket. So, it's easy to grab,
especially if I have um a bag that I'm
rolling through the airport. I don't
want to have to dig in my bag. So, all
of my essentials are in that vest. So,
that if you don't take anything else
away from this presentation, that vest
was a game changer. Like I said, it's
not the most, you know, fashion forward,
but you can dress up the entire outfit
if you want to. So, just wanted to throw
that in there. And I can keep those med
medicine containers right there in my
pocket as well for those unexpected
things. Like at my regular
prescriptions, I have a set time, but I
who knew who knew that the lady was
going to be eating peanuts next to me.
So, I have it right there next to me. I
don't have to get up. I don't have to
leave my seat. I can just pull it out of
my pocket. So, if you don't take
anything else, that's that's a good one
to take from this presentation. Yeah, it
is. And then the other one is u mindset
prep. Um,
don't let the perfect be the enemy of
the good. And I think that was uh my
setback to traveling or my mindset
before um I really got my um chronic
illness under control. It's just like
the thought of travel when my when my
regular day sometime is sometimes
overwhelming. Now you want me to go into
this foreign place in this for where I
don't know anything about the food. I
don't know anything about the terrain. I
don't know anything about what the next
person is going to be doing next to me.
Um, that can be overwhelming. The the
thought of the pace or the or schedule
can be overwhelming. But if you have the
ability to plan that out,
add in some buffered time, whether it be
breaks in the day, breaks in your
itinerary, extending your vacation or
your trip a little bit longer so you can
add in days of rest in between. Because
what you don't want is to have to have a
vacation away for after your vacation to
where you're not even rested or enjoy
yourself when you go because you won't
want to go again. So, how can you make
that the most enjoyable experience
possible? It's not by cramming. Not
always going to be by cramming every
little thing in. It's going to be making
sure that you prepare your mind to say,
"Okay,
what I need today is going to be
different than what I need the next
day." And if I'm planning an excursion
today and I know my body, let me plan in
some rest and relaxation so I can enjoy
the next adventure that I have planned
for that particular trip or that
particular vacation.
So managing symptoms on the road
and again I'm going to always preface
this by saying and I know firsthand how
I manage one chronic illness is totally
different than how I manage another. So
there's no way I can give tips for
everybody's chronic illness or
everybody's trip. Um I mentioned earlier
I do travel on planes but I also hike. I
also camp. I'm camp trained all of that.
And so that's a different set of um I
don't want to say skills of preparation
than I would have for flying. So these
are just general overall tips. So how to
prevent and respond to flare-ups. Making
sure as I just said that you have a
rescue kit. No one knows you better than
you. And it's always better to be
overprepared than underprepared.
Especially if you're going somewhere
where you don't know where there will be
a store. Um you don't know if they'll
have the medication that you need. Um
you don't know what kind of food that
they have. It's always better to be
overprepared. So making sure that you
have heat packs. Um I carry those with
me um well in everywhere I go now, but
especially on trips. those not the
heating pads, but the heating um I guess
stickers that you can put on you because
again, if you're going to be sitting for
long periods of time, and that's a
trigger for you, you want to make sure
that you have something that's soothing
and keeps keeps your muscles warm. Um so
that you're able to enjoy your vacation
and your excursions. Um essential oils,
peppermint oil for nausea, little things
that will help you throughout your trip.
Anything that's going to help you reduce
your symptoms quickly. Um, you don't
want again to end up having a vacation
from your vacation. So, preparing ahead
of time and knowing what your flares may
possibly be is going to be going to be
key from preventing them in the first
place. Um, the next one is um fatigue.
Again, knowing where you're going is
going to be so important to this. I
remember when I was going to uh when I
went to France, um I I should have
chosen a different airport to fly into
uh because the trains that I had to take
to get to my actual destination, which
was an additional 3 hours on top of the
flight didn't have elevators.
Now, they may be used to that in Europe,
but I wasn't used to that over here in
America, and I wasn't used to that as
chronic illness. So, I'm packing these
my luggage up and downstairs, and that
increased my fatigue. So halfway between
um well after the flight and my actual
destination, I was ready to go back
home. Like I was literally I was like I
I don't I don't I don't want to do this
anymore. Like I press through. Um, but I
was like, "Okay, next time, mental note,
note and phone, make sure that I check
to see where I'm flying to and and if
it's accessible for me um before I
actually go because that made my first
day
after I landed and got to my destination
that much more difficult because I have
to recover just from the flight alone."
Um, and again, pacing yourself. Uh that
means making sure that you may not have
a connecting flight that's back to back
because now if the plane is late that's
extra stress. You're running through the
airport extra stress. Um and also again
as I I want to reiterate making sure
that you plan those into your vacation.
I know a lot of times we want to
incorporate all of the excursions and
all of the trips because we haven't been
out in a while. We want to make sure
that we get it all. But making sure that
you incorporate that into your vacation.
The next thing is GI issues and
inflammation.
Um, there are a lot of inflammatory
triggers with chronic illness depending
on what you have, but especially with
autoimmune disease. Um, food is a big
trigger. I'm gluten-free, grain free,
sometimes um I'm do okay with dairy, but
if you know that you have those
restrictions,
make sure to plan for that ahead of
time. Even on the plane they may say um
we provide a diet we provide a meal for
your dietary restriction.
However, the meal that I got that I
don't think they put much effort into
for the dietary restriction. So even
though that's an option for you, I I
urge you to consider bringing your own
food on the flight um to make sure that
you have something edible, especially if
it's going to be a long flight. Um
preparing if you are on the road. um
knowing your pit stops ahead of time um
so you know where to stop. There are a
lot of there are several apps um that
are on the market now that did not used
to be on the market where they tell you
restaurants that you can stop at um and
and even food that you can get um that
cater to your particular dietary
restriction because again if you get in
a situation where you don't have those
things and you're not prepared and you
eat something um that causes a flare
then you then you're dealing with
stomach issues. And if you're like me,
food triggers inflammation in my body.
So now you're dealing with that on top
of everything else that you have going
on with the trip. And the the next thing
is, and again, this is not a
comprehensive list. I can go on and on.
Um joint and muscle pain, especially for
long excursions,
um for me being sedentary for long
periods of time, cause me to have a
flare. My knees will swell up. Um I had
double shoulder surgery in 2023. I had
knee surgery in 20 um 19. I know I look
young, but I've been through a lot. Um
and I'm speaking from experience. Um
packing light movement tools. And I know
that you're like, Jamie, I'm going on
vacation. Why do I need to pack a light
movement tools? From my own personal
experience and from the experience from
teaching over the years, especially
people with chronic illness and limited
mobility, the ones who are able to
function best are the people who move on
a regular basis. I repeat, the people
who are able to function best are the
people who move on a regular basis, even
when they're on their trip,
even when they're on vacation.
We're not talking about doing hit
workouts. I'm just talking about keeping
the joints warm. Um,
and when you talk about the scope of
removing barriers for women in travel,
if you're not able to move on a
day-to-day basis, you're less inclined
to want to travel because with travel
comes walking, with travel comes
movement, and your body needs needs to
be prepared for that ahead of time. Um,
and also too, when you're in the process
of traveling, sitting in those long
spaces, whether it be the airport, the
plane, wherever the case may be, you
don't want that to be the thing that
prohibits you from having an awesome
trip because you're swollen and inflamed
because you've been sitting for extended
periods of time. So expect symptoms but
protect yourself and invest in yourself
ahead of time so that you know and will
be able to mitigate them and prepare for
them ahead of time so that you can still
enjoy your trip.
And I'm also watching time to make sure
that I don't go over and I think we're
I'm doing okay. And and I've touched on
this um a little bit, but I'll go over
it again because it is so important. Um
again, for me, um well, I guess for a
lot of people, depending on what you
have, um I mine is more with my immune
system dealing with inflammation. You
may have diabetes, you may have, you
know, kidney issues where you can't eat
a lot of protein. There's all types of
different considerations. Um, so before
your trip, whether it be a road trip,
whether it be a trip to the airport,
um, a flight trip, pack safe snacks.
It's better to have them and not need
them than need them and not have them.
Um, research stores before you travel.
So, if you're going to some place where
you're going to be um, buying food when
you get there, make sure you research
the stores before you get there. Make
sure you research the hotel if you're
considering getting um room service to
see what their menu is or if they have a
special menu that caters to your dietary
restrictions. Um also see if they have
depending on where you're going in the
country, out of the country. I know that
every location has something different.
Here in the US, we have Instacart
something that they can bring it to you
so you don't have to go out of your room
in order to get food in. Um you can
order it ahead of time and be prepared
ahead of time and know before you even
get there and have everything delivered
to your room. so you're not having to
travel with it. Um, one of my favorite
things because you know I'm also a
foodie as well. I'm not sure if you're
familiar with tackle boxes. They have
the small little tackle boxes, but now
they they've even gotten fancier, I
guess, on Amazon um with um I guess uh
trader boxes. So, I pack little snacks
in that. It clamps down and so I make
sure I have a variety of everything
because depending on my mood is what I'm
going to want. So that's I find that and
it's easy to pack as well. Easy to pull
out of your purse and eat some eat while
on the plane. Um and also in the car.
You'll see that a lot. Um you can pack
one if you have multiple people in the
car, kids. It's easy for everybody to
have their own snack tray. Oh, cool. Um
and they can put what they want in it.
You are amazing.
Huh? You are amazing with packing. You
have many packing tricks.
Oh, yes. Oh,
definitely. I tend to um overpack. So be
only because again with all the chronic
illnesses like I just got over like I
just woke up and my entire face was
swollen last week. Entire face like I
had to go to the doctor didn't and again
if you're watching this live or on the
replay if you have chronic illness
especially things dealing with your
immune system doctor's like what
happened? I don't know. I just woke up.
Oh yeah I see. So I've I've become
accustomed to being prepared for almost
anything. Um, and also too with chronic
illness because you are not in control
of a lot of things with your body.
Whatever I can control type of
personality that I have, um, I I I I try
to make sure that that's covered.
Um, so again, um, so that's before your
trip. Make sure that you do all your
research. Make sure that you have the
snacks that are um, suitable for your
um, suitable for your chronic condition.
Again, don't just rely unless you know
and have have traveled on this
particular airline before that they um
provide something that's tasty for your
dietary restriction. They provide
something for you. Um but it might not
be tasty and you don't want to be like
me and be like, "Well, oh man, uh this
is a long 10-hour flight. I have
breakfast, lunch, and dinner to go
through this." Uh and especially when I
was um on Air France, uh it's a lot of
bread. I don't do gluten or I don't do
wheat. So, it was I couldn't I couldn't
I couldn't switch it up even if I wanted
to. So, uh make sure that you prepare
ahead of time, but don't assume um that
they're going to have something that
you're going to enjoy. And if you want
it to be enjoyable for the entire
duration of your trip, it's not the
actual vacation, but that that flight
time is important. Your comfort um and
and it being an enjoyable experience is
also going to be important. And making
sure that you have food is going to be a
part of that process. Also,
I have or have had a bad mistake of uh
doing this because a while back I did
not like to use the lavatory on the
plane
in all my years of flying. I think last
year was the first time I have ever used
the lavatory on the plane. Um it's
important for you to I say that to say
it's important for you to hydrate. Um, I
was not hydrating before
because I was like, I don't want to use
the the bathroom while on the plane.
I'll just, you know, not drink anything
and not drink any water. Um, but that
can cause a a plethora of other issues,
whether it be muscle muscle cramping,
um, whether it be um, headaches, uh,
nausea, u dizziness just from the lack
of hydration depending on where you are.
And again, I'm speaking from the
perspective of the plane um, or being on
the plane, but that can be anywhere. It
can be in a car. Um, it can be while
you're on an excursion. Making sure that
you're hydrated and and paying attention
to the cues that your body is giving you
is going to be uh uh extra important.
Uh, dining out, especially if you're in
a different country. Well, I don't want
to say that. Regardless of whether you
of where you are, you're going to want
to make sure that you check ahead of
time with the restaurant to see what
they have on their menu. Number one, um
depending on what restaurants you go to,
the chefs may not allow or might not
have modifications or adjustments for
your dietary preferences. Um so make
sure that you check before you go
because again, you don't want to be the
odd ball out depending on if you're
going in a group um where they choose a
restaurant and you don't have anything
to eat. So make sure that you're
checking that ahead of time. Um, and not
just if they offer um uh or or cater to
your restrictions even specifically, is
it cooked in the same kitchen? Um,
because there could be
crosscontamination. Is it cooked in the
same oil? Like I don't eat, you know,
pork, but I do eat fish. If it's cooked
in the same oil, it's kind of defeating
the purpose. So, make sure that you get
specific um with those particular
questions. And then if you're traveling
um internationally and you want to make
sure that you're very clear, um you can
have an allergy card that lists your
food's reactions clearly um in that in
the language of the country that you're
going to so that you can make sure that
it's translated properly. Um, also look
for the common ingredients that are
used. Um,
typically, I don't want to say this
across the board, the the the
internationally away from the US, the
ingredients are a lot better than they
are in the US. So, if you're coming to
the US, from a different country, um,
that may be more of a concern than it is
from for someone that is going from the
US somewhere else. But if you have a
specific dietary restriction, um like
for example, night shades, um peppers,
anything in the pepper family, things of
that nature that are common, you know,
like for me with um inflammatory issues,
you might want to check that before you
go. But if you're going to a different
country, it might be, you know, other
than the US may be uh not so bad, but if
you're coming to the US, make sure you
do that.
So staying healthy during your trip and
these are just general uh uh tips. Um
overall and I would say regardless of
whether or not you have a chronic
illness, but even more so if you do um
bring blackout masks and stick to your
windown routine.
So remember I mentioned earlier that
some of the things that could happen is
disturbance of your routine and of your
schedule, especially if you're traveling
to a different time zone. um and your
sleep schedule is off. That happened
with me when I was going back and forth
and it took me a while to even recover
afterwards when I got back home from the
trip. Um so making sure that I bring a
blackout mask so I can simulate, you
know, nighttime when I'm sleeping during
the day and those transitions when I'm
in the air was really um helpful. if and
I know it's going to be hard for you to
but if it's possible depending on where
you're going what types of activities
you have um sticking to your windown
routine um and just just for me I am not
going to enjoy myself as much the next
day if I don't get a good night's sleep
and the last thing you want to do is to
go through all of this preparation and
planning you know spending money on a
trip um and because you are tired from
lack of sleep or lack of rest you're not
able to enjoy it as much so make sure
that you are doing those things to the
best of your extent. I do. You say I
bring a lot of stuff. I do along with my
pillowcase. I bring lavender spray for
my pillows. Um the eye mask and all of
that um to make sure that I can simulate
the experience that I have at home or my
routine that I have at home while I'm on
the road. Um also depending on how long
I'm going to be there as well. We've
already talked about hydration and self
checks. I've even found that bringing
those hydration packs where whether it
be um I use a particular brand I use is
called Ultima for hydration. So,
anything that you can bring extra for
electrolytes um especially if you're
going to be doing a lot of walking um
it's a um more humid or hot environment
than you used to and making sure that
you're checking in with yourself.
Mindfulness again, regardless of whether
you or not you have chronic illness,
this is going to be um key. And it's not
just about uh meditation. Um it's about
about being aware of what you need in
real time. Um and honing in on that and
making sure that you're being proactive
um and listening to your body before you
have a flare or before the fatigue
becomes unmanageable, unmanageable. So
incorporating um those mindful
techniques will help you catch those
flares a lot faster. um so that your
trip can last longer and be more
enjoyable. Uh finding joyful moments.
Everything doesn't have to be go go go
when you have chronic illness. Um I
mentioned earlier not letting u the
perfect be the enemy of the good. Um you
can have an enjoyable moment on a walk.
Um you can have an enjoyable moment on
on your hotel balcony looking out of the
window. Um you can have enjoyable
moments almost anywhere you go. So don't
think that you have to be on go quote
unquote or doing a specific task in
order to enjoy that vacation. Sometimes
the vacation is or part of the vacation
is doing nothing because often times in
our daily lives it's always something.
Um so you don't have to be doing
something quote unquote to be doing
something. Enjoy those moments any time
that you can get them. And then also
movement and not just movement for
exercise which is helpful. Um movement
to clear your mind uh movement to as as
a part of your meditation um as a part
of pain reduction as a part of
increasing your circulation especially
when you're um coming off of those long
flights. But the key is also too being
prepared for it. Um a key part in this
as well as I mentioned is I think you
mentioned earlier the trekking. You
mentioned you mentioned training and and
climbing Mount Kilimanjaro. Did you
mention that as well? So, see, I just
joined a hiking club. I I used to do 5ks
and run all the time and it's a lot
different. When I joined when I joined
the hiking group, I was I thought I was
going to be Oh, cuz I just had surgery.
When I saw them cross trainining at the
gym with uh what we call the the I
forgot the name of the backpacks. I was
like, "Oh, this is serious." So, I had
to go out and buy me some trekking poles
cuz it's a different terrain. um had I
not known and been prepared for those
types of hikes, it might not have been
as an enjoyable experience. So when
you're when you're planning for your
movement, when you're getting your
movement in, whether it's just for a
walk, we're not what over over in
France, a lot more heels than it is over
here in Houston, Texas. So even that
little bit in understanding that and
knowing that
um so you can prepare whether it be with
shoes, proper gear is going to be
important. But make sure you get your
movement in, but make sure that you're
prepared for the type of movement that
you're going to encounter based on where
you're going and what you're doing.
And so with that being said, I'm going
to go through these rather quickly just
for the sake of time. Um because I just
want to reiterate the importance of the
movement because that's my thing and
that's what that's what I do. And again,
if you don't move, if you don't have the
capability of moving, you're not going
to travel. You're not going to want to
travel. that's going to be a hindrance
for you. And even if you you're able to
to get up and move and and actually make
it to your destination, if you don't
feel good,
if it's a cumbersome process for you, if
you feel pain while you're move moving,
you're not going to enjoy yourself and
you're going to be less likely to plan
that second trip. Um so making sure that
you're you're stretching in the airport
is going to be critically important. It
helps relie relieve the tension, improve
circulation, um discomfort from um uh
moving long periods of time, whether it
just be reaching your hands over your
head. Um using resistance bands, things
of that nature that you can carry with
you in your luggage and your carry-on is
going to be extremely important. And
even on the plane, in and out, in and
out, especially with the legs I
mentioned earlier, that aisle seat,
I don't even see how people sit for that
long. And even on the international
flight when the seats the spacing was a
little bit larger, it was still
difficult for that long period of time.
So when the the seat belt light is off
and you're uh and you're on the plane,
make sure that if you can that you're
getting up and moving around um to keep
that circulation going. Um even in the
hotel room, a lot of hotels now um have
gyms. A lot of them even have specific
rooms where you can get uh fitness
equipment, but you know, you might not
be the fitness person and don't want to
do all that on your on your vacation,
but at least getting some movement in so
that you're not stiff and preparing your
body for movement. Um, we don't
necessarily think about warming up to go
on vacation. Um, but we warm up when we
do an exercise. And if you're going on a
long walk for the day, excursions for
the day, and you don't prepare your body
for that, you're going to you're going
to be more prone to injury. So before
you before you walk out that hotel room,
making sure that you're doing some
squats, even if you're laying in the bed
and stretching, it's going to be helpful
um to keep you moving throughout the
day.
So again, the gear
is going to be extremely important. Um I
have a different pair of shoes for
everything. And since y'all are climbing
Mount Kilimanjaro, I know that you all
know that that's important. I didn't
know again my running gear is different
than the hiking gear. I had to go out
and buy the wool socks. Um, what do they
else did they tell me? The specific
hiking boots. I got those. I went to the
store. I tried them on. They had a
little heel that I walked down so I
could see I got a size bigger. It was I
didn't know like I have full out gear. I
have the backpack um with with my with
my camel pack and all of that. So making
sure that again you could be going to
France, you could be going to Mount
Kilimanjaro that you know ahead of time
so that you have the proper gear and the
proper shoes. The Rebot might not get
it. The Brooks tennis shoes that I use
for running are not the hiking boots
that I use for hiking and going up and
down different terrain. So make sure
that you're aware of that. Um it's going
to be critically important. And also
making sure that you're controlling your
breathing. Again, we talked about um uh
different environments, um whether it be
uh different elevations, um different
types of weather, um different types of
speeds, um depending on how fast or slow
your group is moving, all of that makes
a difference. Um make sure that they're
aware of your limitations. Um so they
can help you um on the journey. is going
to be important in making sure again
that you're maintaining your stress
level or reducing or mitigating your
stress level by making sure that you're
taking in those mindful moments and
focusing on your breathing as well. And
so these are just some little exercises
that I have that you can um do and I
have them actually in my lap. You said I
always have anything these little bands
are so easy to pack.
For me, it's essential. I mentioned
earlier, I'm have rheumatoid arthritis,
which impacts my joints. I had shoulder
surgery. This is one of the things that
I can do on a plane, put it in between,
and I'm exercising. And this is what I
mean by exercise. I know you're like,
Jamie, we're not exercising on vac. This
is what this is all you have to do.
We're keeping it simple, right? You can
put it under your foot while you're on
the plane and you know uh and contract
expand your arms in and out and the
little bit of space that you have even
over your head going above your head. As
long as you're getting some movement in
that added resistance is also building
your muscles which also will when you
when you build muscle what does it do?
Brings down your blood sugar. So the
more movement that you get in uh the
better. So we have those resistance
bands. We also have the loop. Again,
something simple. It already comes in a
loop. You can put it around your ankles
while you're sitting in in the plane,
while you're in the airport, um while
you're in your hotel room.
Legs side to side. You're getting some
extra resistance in as well. And then
also
seated rows, leg curls. I mentioned
earlier the you might not want to get
out of bed, but you need to stretch.
You're in a hurry trying to multitask.
You can lay in that bed and put that
loop around your feet and and have at it
and then you're going to be ready for
your day because your your muscles are
going to be warm and you're not just
going out there willy-nilly trying to
climb Mount Kilamanjaro without
stretching before you go. Yes. And then
you have this other this last band. And
all of these are easily um can easily
fit in your luggage.
They're really easy to incorporate. And
again, I'm just saying you might just
want to incorporate this on your trips
for your for your people. Anyway,
these are simple. You can get them off
of Amazon, little little little bands um
to add in. And some people just like
working out while they're on vacation
because it's going to be harder for them
when they get back to get back into the
routine. So, these are simple things
that you can take with you to
incorporate if your hotel does not have
a gym or if you just want to keep it
simple and not even go to the gym, you
can pack that and do that almost
anywhere. And again, some other examples
of how you can do that in your hotel
room. Just clip that on the door and
have at it.
some other ones while you're sitting
that you can do on the plane.
So, supporting your mental wellness on
the road. Um, and again, I wanted to add
this in. Um, it's it's good for
everybody, but I know for me
specifically when you're going through
that chronic illness journey, a lot of
us have more than one chronic illness on
the hardest days because you can't
control your body because you thought
your life was going to go a certain way
because you thought you were going to be
able to go on all of these adventures
and your mind says no, your mind says go
and your body says no.
the mental toll that that takes on you
is sometimes far worse than the physical
toll of that particular um your that
particular chronic illness. Um so making
sure that you are taking time up out to
recognize those feelings
and address those feelings and determine
why you're feeling that way. Um is it
something that you can control? Is it
something that you can um manage if you
have the proper tools, if you have the
proper proper support?
A lot of times, again, the way that I'm
able to do this and and I and I
mentioned earlier, I became um addicted
to movement, quote unquote, um because
it was the only time that I felt like
myself. It was a time where I wasn't
thinking about work. I wasn't thinking
about kids. I wasn't thinking about my
illness. I had an endorphin rush. It was
like a high and I was actually in that
one hour per day able to really think
and say, "Okay, Jamie, it's going to be
okay." Um, that's how I got into I say I
run, but it started off like a little
walk. That's between a walk and a jog.
Um, during that time,
I didn't think about anything.
Um, it gave me a sense of
accomplishment. Um, and so the I view
things a lot through the lens of
movement, but not just movement in the
in the in the space of my body. Um, but
in the space of my purpose, I'm moving
my purpose forward. I'm moving my life
forward. Um because I am accepting where
I am and the life that I have but in
spite of making strides, getting
educated, learning tools, um so that I
can live my life to the fullest. It may
look a little bit different than I
thought it would have without chronic
illness, but I can still enjoy the
things that other people enjoy in spite
of it. There was a time in my life where
I was just like, "This sucks and it's
going to suck for the rest of my life."
It was it was years where I had not been
on vacation at all. It was a span of 20
years where I did not go anywhere. Um
because I was in a space of woe is me.
Um but I had to get to the point where
I'm like, if I want the years ahead of
me, even though they don't look like
what I thought they would be, to be
greater than the years behind me, I have
to do something.
None of it is linear. There are good
days and there are bad days. But if had
I done had I done nothing, where would I
be? Um
where would I be if I had done nothing
versus where would I be if I take small
steps on a daily basis? And so that's
what I mean by mindful movement. How are
we moving that needle forward in spite
of our circumstances and in spite of our
chronic illnesses? Planning and
preparation, which we've talked about
throughout this presentation.
And again, taking those mindful breaks
sometimes, depending on where you go and
who you're with, um, it could be more
difficult. I try to surround myself with
other people. I went on a trip recently
and I've been doing a lot of advocacy
with other people who have chronic
illness. Sometimes when you go on a trip
and when you go on a conference at work,
just give the example, you're at work
and you're traveling and you're sitting
all day and you're doing presentations
and then afterwards they want to go to
the bar. I'm like, I don't want to go to
the bar. I want to go back to my hotel
room and chill out. the people with the
chronic illness, they understand that.
So sometimes if you're on a trip, you
can feel like right that that you're a
barrier to other people or you're you're
you're not enjoying the trip or able to
enjoy the trip to the to the fullest
extent um because of your limitations.
And again,
knowing that ahead of time and preparing
your mind ahead of time for that and
taking those mindful breaks and saying,
"Okay, in spite of I'm still enjoying
myself. If I do go out, I won't be able
to enjoy myself tomorrow. The lesser the
lesser of two evils. I I'm proud of
myself for even making it this far
because it's farther than I've made it
before." Um, it's really going to be
important for you to enjoy yourself in
the present and to continue to travel
going forward, making sure that you have
joy in the in the current moment.
So, putting it all together and I'm on
time. I am surprised we have about 9
minutes. So, putting it all together.
Um, adaptability is key. Making sure
that your your routine is flexible so
you can modify your hotel rooms, modify
for your airports, and modify for your
outdoor adventures. Um, if you're
traveling in a group, making sure that
the group leader or someone there or
whomever you're traveling with is aware
uh of your limitations. Um, and seeing
how they can work with you. um smart
food strategies, packing
anti-inflammatory foods or being
prepared. Knowing where you're going to
go, uh where you can shop if that's the
that if that's what you're going to be
doing while you're there, if you're
going to be preparing food for yourself,
knowing what the hotel serves, knowing
what the city serves, what's the
culture, do you have any restrictions
and preparing for that ahead of time.
making sure that you're having your
daily movement touch points, you're
walking, you're stretching in your hotel
room, even if it's on a day where you're
not moving at all and it's your rest
day, lay in that bed and swing that leg
up side to side, do something so that
inflammation won't set in and you'll be
able to enjoy the next day to the
fullest, making sure that you're mindful
everywhere. Sometimes, again, on a daily
basis when we're not traveling, the
chronic illness can get you down, but
you don't want it to get you down while
you're on vacation because you paid your
good money for that. So making sure
making sure that you have those mindful
moments and you bring yourself back. A
lot of times I do that with gratitude.
Like I may not be able to do what I want
to do but I'm doing much more than I
thought that I would because I am here.
And when you re I like to call it the
reframe. When you reframe
um and have a different perspective, it
makes things go a lot easier. And if
stress is a trigger for you for your
flare ups like it is for me, you're
going to want to make sure that you're
incorporating those mindful moments
everywhere.
Don't think of rest as a negative thing.
Rest is productive. Make sure that you
schedule those breaks in. And don't
hesitate to recharge when your body
signals that it needs it. And even
before your body signals that it needs
it. Um it's it's almost like now before
I used to go go, but now I need a nap
before I go out to the club. If I went
out to the club, I know I would need a
nap before I went out. I can't just just
get up and go. I need electrolytes and I
need a nap before I turn up. Um,
hydration matters. Again, going on to
the next one, electrolytes, filtered
water, making sure that you're sipping
um frequently to help support your
system. And again, that people
underestimate that and I've mentioned it
a couple of times. um with your
hormones, uh with your blood sugar, um
with with your inflammation, you're
going to want to make sure that you're
staying hydrated just to enjoy your
trip, period. Especially if you're
having a little drink, you know, make
sure you stay hydrated with water. Um
and then also, again, just to reiterate,
making sure that you're looking for joy
in every moment. Even if it's laying in
bed because you've had a long day,
whether it's a quiet view, a laugh in
the hotel lobby, or on the plane, enjoy
your experience while you're there.
Important dos and don'ts. Making sure
that you're man managing your energy
wisely. Celebrate again those small
victories that you have. I know for me,
just planning a trip at one point in
time was a victory cuz I didn't want to.
I'm going to be more tired. That was my
mindset. When you think about mindset,
I'm gonna I'm gonna go on this trip and
when I go back, come come back home, I'm
going to be in a flare for a whole week
and then I'm going to get behind on my
job and then it's just going to be like
I need a vacation from a vacation. Who
wants to go through that? But if you
plan properly, you don't you you'll know
that you're going to be restored after
your vacation rather than being uh tired
um and cranky because you're behind
after your vacation. Don't push yourself
beyond your limits. And those may change
from day to day. Um from year to year,
from week to week sometimes, you know,
in this period, menopause, menopause,
hour to hour, it may change. I know all
of you may not be there on the line on
the on the presentation. You may not be
there. Um but I'm up in age. And so, uh
the menopause is a consideration as
well, but don't push your limits. Um and
again, just to reiterate, every moment
is a moment of joy. whether you're
having a conversation on a plane with
someone and I always strike up a
conversation with anybody that I'm with.
If I know you or not, um find those
moments of joy throughout that vacation.
And then at the end, I have for you, if
you have any questions, let me know. And
then I also have these checklists. Uh
and as I mentioned, there's impossible
for me to cover everything. Each of
these slides could have been an entire
presentation in of itself. Um just
because there's all so many different
types of trips. There's road trips,
trains, um there hiking trips, local
trips, international trips, what have
you, that all have different
considerations. And so these uh this
particular checklist has checklist for
almost everything. It's 60 pages. Again,
it's not as comprehensive as it can be.
I'm always adding things to it. Um, but
it's a good starter for someone who just
wants some quick tips or, you know,
things to jog their memory, things that
they may not have considered um, when
preparing to go on vacation or on a
trip. So, with that, that concludes my
presentation. I know it was fast, um,
but I wanted to make sure that I got
through it and at least leave a couple
of minutes for questions if anybody had
any.
Yeah, thank you so much, Jamie, for the
presentation. It's amazing. I learned a
lot, especially for the movements and
and packing. I'm not that good at
packing. I learned a lot from you. Thank
you so much for the presentation. And do
you have any questions?
Uh, Kelly, do you have any question?
No questions, but I just wanted to say
thank you so much to Jamie. This was
very very uh insightful, a lot of useful
tips and uh you clearly have so much
experience with travel. So I appreciate
you coming here and sharing all of your
knowledge with us. Thank you for having
me. Yeah, M. I really appreciate it. Uh
I learned a lot a lot especially for the
movement. I don't move at all when I'm
in the airplanes. I just want to sleep.
Yeah. I mean, I want to sleep too, but
for me, just because with my chronic
illness, I have so many joint issues and
it like like even when I go to a
restaurant and I sit for long periods
periods of time, I'm I'm constantly
moving my legs under the table because
if I don't move them, inflammation will
set in my legs. Um, that's why in the
beginning um the the beginning slides, I
had on compression pants. Those are
those are actually my compression pants
that I use to run. I do not run without
those. Um the compression not only helps
when I'm traveling with the circulation,
it helps when um afterwards so I don't
have as much swelling from the sitting
and I can actually enjoy my trip when I
get there just by, you know, having a
couple of extra tools. So I guess I
don't look fashionable when I'm
traveling with this compression pants
and the vest, but it's a lot easier to
move around and I feel a lot better and
I do a lot better as far as managing or
mitigating my symptoms. I want to have
my compression pants um and my vest with
all my medications and pockets on it.
Okay. Thank you so much. And you're
welcome also to our next event. It will
be on 30th June at 6 p.m. PDT. And I I
just want to remind you about the
upcoming trips. If you are interested,
we have to climb Kilimanjaro. And now
you also have to be ready and do the go
to gym and train. As Miss Jamie said,
you have to move. We have October luxury
safari in Tanzania, November Peru and
Guatemala. And for 2026, we have Peru,
Morocco, Costa Rica, Bali, and Tunisia.
And thank you, thank you so much, Jamie,
for the great presentation and tips. I
really would love to to see you next
time also in our community event. You're
welcome to attend and yeah,
absolutely. Thank you. You're welcome.
Have a good day. All right. You too. You
too. Bye. Thank you. Bye. Bye. Bye.