Members’ Business: Action Mesothelioma Day 2026 - 25 June 2026
Watch on YouTubeVideo summary
The Scottish Parliament convened to discuss Motion 343 regarding Action Mesothelioma Day 2026, a significant event marking the fifth year of dedicated parliamentary attention to honor victims and families affected by asbestos-related diseases. Marie McNair opened the debate by highlighting the severe impact in her constituency of Clybank, which suffers from one of the highest mesothelioma mortality rates in the UK due to historical industrial exposure. She underscored that this is not merely a disease of the past, pointing to rising case numbers and new victims among women, teachers, and healthcare workers who face risks through secondary exposure or living in older buildings containing asbestos. The discussion emphasized the urgent need for fair compensation, increased research funding, and corporate accountability, specifically referencing the "Cape Must Pay" campaign which seeks a £10 million donation from Altrad to support vital research initiatives.
Speakers throughout the session reinforced the call for legislative reform, particularly addressing the "disgraceful three-year time bar" for legal claims, which is widely considered unjust given the long latency period of mesothelioma. They paid tribute to deceased campaigners such as David Corrin, Tony Worthington, and John McDougall, whose legacies continue to drive the movement for justice. The debate also addressed practical challenges, including the dangers posed by abandoned industrial sites to trespassers and the specific barriers women face in proving their exposure sources. In response to these concerns, Minister Alison Phillis confirmed the Scottish Government's commitment to introducing legislation that removes the time bar limitation on claims, aligning with recommendations from the Scottish Law Commission while acknowledging the ongoing difficulties faced by affected communities.
Beyond the specific issues of mesothelioma, the session highlighted broader efforts within the Scottish Government's 10-year cancer strategy aimed at placing every patient at the center of care decisions. Significant progress is being made through single point of contact pilots, supported by a £2.5 million investment to expand this program across Scotland, ensuring patients receive coordinated support. Furthermore, the Transforming Cancer Care Partnership with Macmillan, valued at over £27 million, provides specialist key workers who offer essential emotional, financial, and practical assistance to those battling cancer. These initiatives demonstrate a comprehensive approach to improving patient outcomes and supporting families during difficult times.
The debate concluded with a reaffirmation of the government's support for critical research and clinical trials, such as the HIT MESO trial, alongside continued community efforts to raise awareness and provide aid. Minister Phillis announced plans to light St Andrew's House in blue on Action Mesothelioma Day, symbolizing solidarity with the victims and their families. As the meeting drew to a close, thanks were extended to all contributors for their passionate advocacy and dedication to this cause, followed by wishes for a wonderful recess before the next session. The proceedings served as both a memorial to those lost and a powerful call to action for future generations to ensure no one else suffers from preventable asbestos-related diseases.
Read the full video transcript
Can members leave the chamber quietly,
please?
>> Thank you. Our final item of business
today is a debate on motion 343
in the name of Marie McNair on action
metheloma day 2026.
And the debate will be concluded without
any questions being put. I request all
members who wish to speak to press the
request to speak button now. And I call
on Marie Marie McNair to open the
debate. Uh seven minutes, please. Thank
you, presiding officer. This is the
fifth year that I've managed to secure a
debate to mark Lisi Filma Day. My
determination to secure truth and
justice for asbesus victims and their
families will never w and can I thank
those members who have supported my
motion and those who are speaking in
today's debate. This is an issue that
deserves cross party support and once
again that has been achieved. I also
invite parliament to welcome members of
the claybank asbesus group and uh
asbestous action t-side and a special
mention to Christine sers uh my local
hero from Claybank aspis group who will
be visiting the parliament again on
Saturday.
For decades they have stood beside
individuals and families at their time
of greatest need. They provide not only
advice and support but also a voice
ensuring that those affected are heard
within this parliament and beyond. Since
my debate last year, we have sadly lost
two central figures in the fight for
truth and justice. David Corin, founding
member of the Clybank asbestous group
and former MP for Clybank and Mogai,
Tony Worththingington, who sadly passed
away earlier this year.
They were a real driving force behind
the pursuit for truth and justice for as
best as victims. True giants whose
legacy and impact has been felt
throughout Clay Bank and beyond.
Unfortunately, presiding officer, every
year I have mentioned individuals we
have lost. For them and for many unheard
victims of as best as exposure, we must
see progress and secure justice.
Mephiloma is a rare but devastating
cancer mostly caused by exposure to
asbestas. Across the United Kingdom,
there are around 2,700 new cases each
year, including more than 200 here in
Scotland.
But statistically alone cannot convey
the reality of this disease. In my
hometown of Claybank, this issue is
deeply personal. Claybank has paid one
of the heaviest prices anywhere in the
United Kingdom for as best as exposure.
Western Bartonshire has some of the
highest misphilyoma mortality rates in
the country. Over a period of nearly 40
years, 295 men died from misphiloma
where only 81 deaths would have been
expected. That gives one of the highest
mortality rates anywhere in the UK. But
even though these start figures do not
tell the whole story, women are in our
area have also been significantly
affected with more than a double the
expected number of deaths recorded over
the same period. These are not abstract
figures. These represent hundreds of
families in one community who have lost
loved ones. Claybank was once described
as a meloma capital of Europe and it's a
title no community would ever wish to
hold and one that speaks directly to our
industrial past ship building,
manufacturing and construction
industries that built our nation but an
enormous human cost. And that cost was
not inevitable.
For decades, workers were exposed to
asbestous fibers, often daily, often
without protection, and too often
without being advised of the risks.
Evidence has since shown that companies
were aware of dangers long before
meaningful protections were put in
place. As campaigners are rightly said,
this was not simply an accident of
history. It was a profound failure to
protect workers. I say in the strongest
terms, knowingly exposing people to a
deadly substance without adequate
safeguard is not neglect. It is an
abortant criminal act. Presiding
officer, the legacy of asbestice is not
confined to the past. It continues to
affect people across the United Kingdom
today. Around 5,000 people still die
each year from asbestous related disease
making it the single single biggest
cause of work rellated death and
asbestous is still present in the
buildings around us. In Scotland alone,
more than 1,700 schools are known to
contain asbestas and there have been uh
cases of teachers, people with no
connection to heavy industry developing
misciloma after exposure in their
workplaces and that is why we need to
see the phased removal of asbestous and
public buildings starting with our
schools. We must also address the issue
of justice. And I've campaigned hard
about what I described as the
disgraceful three-year time bar which
has denied justice to some victims of
asbestous related disease.
Under current law, the an individual
diagnosed with a relatively minor
condition such as pluropla may have just
three years to raise a claim even though
they may not go on to develop misphiloma
until decades later.
The nature of asbesis related disease
makes this time limit totally unjust and
it is welcome that the Scottish law
commission recognized this issue and
proposed reforms.
I met with the first minister and other
members of the government to stress the
urgent need to implement these reforms
and I want to see the earliest possible
progress on this. Presiding officer
despite the scale of the challenge there
is also resilience. Again and again,
I've met individuals who, even in the
face of a devastating diagnosis, choose
to campaign not for themselves, but for
others. And that selflessness speaks
volumes about the strength of our
communities. It also places
responsibility on all of us because we
cannot simply reflect on this issue. We
must act. We must continue to raise
awareness of misophiloma and asbestous
related disease. And we must support
research so that we can improve
treatment and outcomes. And we must
ensure that compensation is fair and
accessible, removing barriers such as a
time bar. And critically, we must
prevent future exposure. That means
properly managing as best as where it
remains and progressing towards its safe
removal from public buildings, including
our schools. Misphiloma is a disease
rooted in our industrial history but its
impact is still being felt today in clay
bank across Scotland and throughout the
United Kingdom. It reminds us of the
human cost of that history and it
reminds us of a responsibility to those
who have been affected.
Unfortunately, mephiloma is not just a
disease of the past. Far from it. In
2023 alone, 2,28
people in the UK died from a stark and
sobering reminder that this disease
continues to take lives every single
year. In communities like mine in Clay
Bank, that reality is not distant. It's
still being felt, still being heard, and
still being lived. Families continue to
face loss. People continue to receive
this diagnosis. and the risks that cause
this harm have not yet been fully
removed from the world around us.
Therefore, this is not a closed chapter.
It is a continuing responsibility. A
responsibility to act where we know risk
remains. A responsibility to ensure
justice where it has been denied and a
responsibility to prevent future
generations from facing the same fate.
Because the burden carried by
communities like Cly Bank has been far
too great for far too long. And while we
cannot change what has happened, we can
decide what happens next. And the future
of this issue, whether it remains a
story of harm or becomes a turning point
for action, is in our hands. Therefore,
our purpose must recognize the scale of
this legacy and recognize our duty to
address it. And in the years that come,
it can be said not only that we
understood the consequences of his
bestas, but that we chose to act
decisively and bring them to an end.
Thank you.
>> I call Pauline Stafford to be followed
by Jackie Bailey.
>> Thank you, presiding officer. I'd like
to thank Marie McNair for her
long-standing commitment to this cause
and for bringing this important debate
to the chamber ahead of action
misotheloma day 2026. I'm pleased to
have the opportunity to speak today as I
have a close relative in England who was
diagnosed with plural misotheloma two
years ago. Now I also represent the
Bathgate constituency which was home to
a wide range of heavy industry where
asbestos use was endemic and which has
also been at the forefront of securing
justice with landmark legal cases like
that of the Atlas steel foundry in the
town of Armadale in my constituency
helping to shape asbestos
liability in Scotland. At the point of
my relatives diagnosis, even family
members who had heard of misotheloma had
little idea of what living with the
illness would mean. For a cancer which
disproportionately affects communities
where heavy industry was present and
which can have such a long latency
period. Raising awareness of misotheloma
will enable those with symptoms to
present earlier and in the case of
diagnosis for patients to be moved as
soon as possible onto the best
specialist care pathways in order that
their quality of life can be maximized
which I'm pleased to say is the case for
my relative. Whilst we are fortunate in
Scotland to have such a strong
misotheloma treatment infrastructure,
Scotland's industrial past and the
historical prevalence of industries here
with a heavy asbestos use mean that we
also have a disproportionately high
number of cases. Which is why I commend
all that the Scottish Misotheloma
Network is doing to improve patient care
throughout Scotland. My family knows
from our experience the massive
difference that treatment by a
specialist misotheloma team makes not
only to the medical outcomes but in
terms of mental well-being and everyday
quality of life. It is essential that
everyone diagnosed with misotheloma is
able to benefit from specialist
treatment wherever they are and whatever
their background. To that end, the drive
to foster cooperation between treatment
hubs as well as research institutions is
welcome and it is essential to ensure
that patients everywhere are able to
benefit from the latest treatments.
Today we are seeing fantastic innovative
research on the condition working to
improve outcomes for outcomes for
msotheloma patients including the
development of new more effective
therapies and better drug delivery treat
techniques. We must also acknowledge
that we are able to have this debate
today due to generations of campaigners
who have worked tirelessly for decades
to raise awareness and achieve justice
for those affected by asbestos related
disease and who have had to fight hard
to hold companies in the asbestos
industry to account.
The industrial use of asbestos may be a
thing of the past, but the legacy of it
still hangs over many of those who
worked with it today. Every member
across this chamber will mark
International Workers Memorial Day in
their own constituencies to mourn those
who have lost their lives and to fight
for safer conditions for workers today.
And we must be guided by this message.
Remember the dead, but fight for the
living. These cannot be just words. The
memory of historical injustice must
drive our actions today, tomorrow, and
every day after. As future generations
deserve to live without fear of asbestos
related illness. However, with patients
generally contracting misotheloma
decades after exposure to asbestos, it
will continue to be necessary to build
the medical and support infrastructures
needed to deal with it as well as other
complex and incurable conditions caused
by asbestos.
I want to thank Marie McNair once more
for bringing this debate to the chamber
today. We must continue to raise
awareness for this cancer and continue
improving outcomes for those affected by
a legacy that should never have been
theirs to bear. Thank you.
>> [applause]
>> Call Jackie Bailey to be followed by
Helen McDeed.
>> Thank you, presiding officer. Can I
congratulate Marie McNair on bringing
this motion to the chamber um and her
consistent championing of this cause as
best was finally completely banned in
1999, the same year that this parliament
was established. And whilst it might be
tempting therefore to associate it with
industries of the past and 20th century
buildings, it remains a feature today.
Strikingly, the nature of misotheloma is
such that because it makes itself known
decades after the first interaction with
asbestosis, we may not yet even have
reached the peak of cases. So Scotland's
history as a shipbuilding nation means
that Scots have suffered
disproportionately from asbestos related
illnesses such as misotheloma. There are
around 200 diagnosis in Scotland every
year and the figure isn't going down.
And while ship builders and tradesmen
may be the most affected, their wives
and children may also have been exposed
to asbestous dust. And of course, all
families are impacted by a loved one's
diagnosis. So the members of Clyde Bank
asbestous group, some of who are
listening here today, have done
incredible work campaigning for the
rights of these patients and their
families to get compensation. Writing
past wrongs is another reason asbestous
related conditions are very much an
issue today. Cape Intermediate Holdings
was one of the largest asbestos
companies in the world. Yet, when the
dangers of Asbestos first became
apparent, Cape downplayed the risks and
withheld their own data, putting profits
before lives. Today, Cape is owned by
the construction engineering company
Altrad, which operates across the world,
and its UK armor loan made a pre-tax
profit of 37.3
million pounds in the year to August
2025.
Campaigners are calling for Altrad on
behalf of Cape to donate a mere 10
million pounds for much needed research
about misotheloma. Yet so far presiding
officer their calls have gone
unanswered.
Then there is the time bar rightly
raised by Marie McNair which means that
someone diagnosed with an asbestous
related condition only has three years
to claim compensation. In practice, that
means somebody diagnosed with
asymptomatic um conditions such as
plural plaques who develop misotheloma
maybe five years later would not be able
to claim even though both conditions
were caused by asbestous. The Scottish
Law Commission recommended helpfully
removing the time bar in 2024. Yet the
last parliament did not legislate for
it. I hope the Scottish government will
make this an urgent priority for this
parliamentary session. Then there is the
fact that many public buildings may
still contain asbestos which becomes
dangerous when disturbed. The Scottish
Borders Council, I understand, is facing
a 2.5 million bill to remove asbestous
from their schools. So I wonder in that
context whether national support is
available from the Scottish government
to assist councils in this position and
like Marie McNair and I want to echo her
comments. I would like to end by paying
my respects to two people. Firstly, Tony
Wthingington, the former MP for Clyde
Bank and Mulgai, who passed away this
year, but he tirelessly campaigned to
bring this issue to the attention of
decision makers at Westminster. He also
fought for compensation on behalf of
countless individual constituents. And
this year, we also lost David Kulra who
founded the Clyde Bank asbestous group
with others in 1992.
As the tribute to him noted, David was a
man who didn't just feel sad or angry
about the injustice he saw. He actually
did something about it. And we can all
be inspired by David and support the
work of the group he helped to found.
Thank you.
>> Call Helen McDade to be followed by
Colum Merrick.
>> Thank you very much, deputy presiding
officer. Uh and I apologize for joining
slightly late. Um, I'm mainly speaking
on behalf of Julie McDougall. I would
say I have an interest myself in that I
didn't know either of these people
because they died so long ago, but both
my grandfathers were minors. Both died,
one very young and the others soon after
retiring of lung disease. I don't know
whether they were diagnosed or not, but
it seems likely that this was a
contributory factor. However, I'm here
today to speak on behalf of Julie
McDougall, uh, my colleague who
unfortunately is taken ill. I'm sure
everyone joins me in hoping she is
recovers quickly. And she very much
wanted to be here. So I'd like to just
read out about Julie's father. Um some
people would have known him. Uh Julie's
father was John McDougall and he was a
British Labor politician who served as
an MP for Glen Rothus from 2005 until
his death. Um and he was first elected
to the House of Commons of Central F in
2001. In 2007 he was diagnosed with
malignant misotheloma and due to his
illness his participation in parliament
became fleeting although he remained an
MP until his death the following year.
He had major surgery before that with a
lung removed uh and uh came from working
in the shipyards. So for Julie this of
course would have been a debate she
would very much want to have been in.
And I'd like to assure uh Mary McNair
and others that uh we will be interested
in co cooperating with any move to take
this forward. Um and yes, thank you very
much for bringing the debate. Thank you.
>> Call Coler to be followed by Carol
Morgan.
>> Thank you presiding officer. I welcome
the opportunity to contribute to today's
debate marking action metheloma day 2020
2026.
I understand it's a long-standing
tradition to mark this date each year
here in the Scottish Parliament. So can
I begin by thanking Marie McNair for
continuing this tradition and
highlighting this issue. One I may say
she has truly made her own and I pay
tribute to her long-standing dedication,
commitment and leadership on this very
important issue over many years now. As
we've heard, action meaththeloma day
provides us with an opportunity not only
to raise awareness of this devastating
disease, but [snorts] also to renew our
commitment to those living with its
consequences and to the families who
continue to suffer because of asbestous
exposure. We've already heard that
around 2,700 people across the UK are
diagnosed each year, including around
200 people here in Scotland. And I would
like us to pause for a moment to reflect
on this to reflect on the fact that
behind these figures every one of those
diagnosis is an individual a family and
a community whose lives have been
changed forever.
Last year's action meaththeloma day
debate also highlighted the fact that
the face of meaththeloma is changing.
When many people still associate
asbestous related disease with
traditional heavy industries such as
ship building, construction and
engineering, we're increasingly seeing
cases among women, younger people and
workers in occupations not historically
considered high risk.
teachers, health care workers, clerical
staff and others have developed
meaththeloma following exposure that
they neither expected nor understood at
the time. And that reality serves as a
stark reminder that the legacy of
asbestosis is far from over. And for
that, I want to take this action to
recognize the tremendous work of action
on asbestous 2. formerly known as
Claybank Asbestous Group which as the
name change suggests is also facing up
to the new realities for the support,
advice and advocacy they have and
continue to provide for those affected
by asbestous related conditions for more
than three decades.
Their dedication has been invaluable to
countless families and they continue to
be a powerful voice for justice and
accountability.
also pay tribute to the wider grassroots
campaigners who continue to fight for
victims and their families such as the
Cape Mustay campaign mentioned today
which rightly highlights the need for
greater corporate responsibility and
continues to call for meaningful
investment in meaththeloma research.
Their efforts demonstrate the importance
of grassroots activism in driving change
and ensuring that those affected are not
forgotten, never forgotten. Presiding
officer, one issue that remains a
significant concern is the injustice
created by the current time bar
arrangements affecting some messthelom
theoma victims. Already heard a bit
about this. Uh as was discussed in last
year's debate, there are circumstances
in which individuals who have previously
pursued claims relating to asytomatic
asbestous related conditions may find
themselves prevented from seeking
further damages if they later develop
meaththeloma, a terminal and
life-threatening illness.
The Scottish Law Commission's report on
damages for personal injury recognized
this problem and made clear
recommendations to address it. I welcome
that work and the growing consensus that
reform is needed to ensure that people
are not denied justice because of a
legal technicality.
And should Marie McNair bring forward
legislation to address this issue, she
will have my full support and I guess
the support of the entire cabinet and
and and parliament. Those affected by
metheloma deserves fairness, dignity and
access to justice and we should work
together across this parliament to
ensure that the law reflects those
principles. As action methyloma day
approaches on the 3rd of July, I
encourage people across Scotland to get
involved in the events taking place in
communities throughout this country.
Whether by participating in a blue light
walk, supporting fundraising efforts, or
simply helping to raise awareness,
everyone can play a part in supporting
those affected and remembering those we
have lost. Presiding officer, I'll
conclude once again thanking Marie McNur
for securing this debate and by paying
tribute to all those campaigners,
organizations, families, and individuals
who continue to fight for justice.
Finally, it is fitting that we're able
to have such a constructive and
consensual debate as we approach the end
of the parliamentary term. I would like
to wish all my colleagues across the
chamber, parliamentary staff, and
everyone watching a great summer and at
least one more football match. I look
forward to us all returning refreshed,
revitalized and ready to rock. Thank you
Paul Carol Mo to be followed by Heather
Anderson.
>> Thank you siding officer. Can I begin of
course by thanking Marie McNair for
bringing forward this important debate
and welcome action math day 2026 which
will be marked on the 3rd of July. In
the years that I have been in
parliament, I'm play pleased to have
played my part in joining Marie McNair
and other members to raise awareness of
this cool condition, to call for further
research, and to call for this condition
to be properly understood as an
industrial injury. As in today's motion,
I think it is really important to
recognize grassroots activism in seeking
justice for victims. It is often
grassroots based campaigns which really
turn the dial on these issues. It is
great to welcome people again this year.
I support the campaign Cape Must Pay
which calls for the former asbestous
manufacturer Cape PLC now Alrad to
donate 10 million to metheloma research.
As my colleague Jackie Ba Bailey
mentioned it is a small amount to
expect. These companies in the state owe
a great deal to individuals, families
and communities. We need this research
and compensation to what is
fundamentally a class-based issue to be
delivered. At this point, it seems
totally appropriate to pay tribute to my
former colleague and comrade Richard
Leonard. Richard, as members might know,
spoke in the yearly debate on this
topic. He was and I'm sure will continue
to be an avid campaigner for the right
to justice for those affected by
metheloma and the right to health and
safety for the next generation of
workforce. People from the last session
of this parliament will know that not
only was Richard Leonard a passionate
committed campaigner. Her spee his
speeches were also very passionate. They
were as passionate as his beliefs and I
thank him for the time here in the
parliament for his guidance and for his
commitment to economic justice. I do
miss Richard in the chamber particularly
for this debate. We always sat up here
in the back to together. He often
mentions socialists and campaigners who
influenced his beliefs and works and I
now do the same by thanking him for his
guidance and influence on the work that
I have undertaken as an activist and now
as an MSP. As Richard Leonard and others
have said um uh methyloma is now a is
not a disease of history. In fact, we
know numbers are increasing. and other
members have mentioned that the reality
for the people in my area is that the
industrial work of the early part of the
last century right up until the mid mid
80s and into the '9s mainly mining in my
area exposed particularly men to
asbestous but of course as others have
mentioned we know the secondary exposure
through clothing and washing washing
clothes etc often undertaken by women is
also a massive risk which these
companies really wanted us to ignore.
were
the time delay in the progression of
this dis disease means that many of my
constituents continue to be affected
from that period as well as of course
the issues that members have brought to
our attention today of the ongoing um
aspestas and how we should deal with
that. So industrial conditions such as
those um that my constituents would be
exposed to really um shows the approach
of big business and insurance giants. We
in this place must be clear that people
are worth more than this and the lives
of workingclass people, those who have
built and maintained our country, those
men and women must be compensated should
their lives be impacted or lost due due
to the nature of this work. I of course
agree that the Scottish Law Commission
report h reports on damages for personal
in injury published in December 2024
must be actioned and I call on all
lawmakers to support this call and of
course on the government to really make
it a priority in the next session. I do
fear we have a lot more work to do to
ensure we keep fighting for proper
compensation, but of course importantly
for proper health and safety within
workplaces to ensure the rights of
workers are at the center of all that we
do and the next generations to come
after us have much better health related
to their work. Thank you, presiding
officer.
>> Thank you. The final open debate speech
is for Heather Anderson. Thank you very
much, presiding officer. I would also
like to thank Marie for securing this
debate and bringing this important
motion to the chamber today. And I want
to start by stressing how important it
is that we continue to do all this
awareness raising. I didn't have a
family member who had contracted this
disease. I basically saw a poster for an
exhibition of portraits of people who
had suffered from the disease and I
thought it was such an astounding poster
that had been produced. I got in touch
with Asbestos Action in Dundee and said,
"I'm really sorry I didn't manage to
make it to that exhibition. Can I come
and talk to you?" So when I first met
the Asbestos campaigners in Dundee, they
were very quick to highlight the
excellent work that Maria's undertaken
in the parliament to raise awareness of
these conditions um and to also advocate
on behalf of those affected. There are
quite there are a few different
charities working diligently across
Scotland to support those living with
conditions due to exposure to asbestos.
We've heard a lot today about the Clyde
Bank asbestos group, but I today want to
focus on the asbestos action in Dundee.
The charity supports those across the
whole of the east coast living with
asbestos related diseases including
plural plaques asbestosis asbestos
related lung cancer and messylomia.
Diane from asbestos action is here today
and I hope she'll excuse me for sharing
some details and praise for their work.
The it's a really small team of four.
They do a huge amount of work to raise
funding to keep the charity going. The
support Diane and her team provides is
in incredibly important to the men and
women up and down the east coast of
Scotland who find themselves suddenly
diagnosed with asbestos related
conditions. They've supported hundreds
of clients across T-side over the last
few years. Um and almost half of those
live in Dundee and they also say that
whenever you call them you will get a
home visit whether it's an iness or dump
they will come and see you. Often
asbestos action staff are dealing with
people who are terminally ill. They and
their families may have only discovered
the severity of the the condition very
recently. Um the staff turn up, they
listen, they sit with people, they
listen to the stories of those affected
and they help them trace their work
histories and support their families
both before and after the illness has
taken its toll. Many of those who do
this work have personal experience from
their own families. They stand with
those affected and their families at the
hardest and most traumatic of times.
It's the most emotionally demanding but
vital work. I read one testimonial about
asbestos action which really stuck with
me and I just wanted to share it today.
It simply says, "Pass on my thanks for
all the hard work undertook on behalf of
my father. He was a very proud man and
if he's looking down today, he would be
delighted to know how much this legacy
has helped his daughters and in
particular his granddaughter.
When you or your family members find
themselves a victim of an asbestos
related conditions, it's groups like
asbestos action who step in offering
support and ensuring you and your family
will get the advice they need. I also
just wanted to take a moment to
highlight the the new generation of
victims of this disease. Many of the new
cases coming forward are women and
they're women who didn't work in
industry but there were teachers, health
workers, office workers. We've heard
some stories today. Um and it can be
very difficult for them to precisely
pinpoint where they would have been
exposed to asbestos. It could have been
in any of the offices, schools,
healthcare settings, or homes they've
worked in. Their locations are less easy
to identify than the large industrial
sites. And they may not have worked
directly with asbestos, but they've
worked in buildings where asbestos is
still active.
Because any application for industrial
injuries disablement benefit requires
you identify exactly where and when you
were exposed to asbestos. This creates
an additional barrier for these women
seeking some form of compensation. And
we know from the statistics that the
percentages of men getting some form of
settlement are much much higher than the
percentage of women. If you can't
identify the source site for exposure or
prove the link, your only route is to
apply for a PWC1 lump sum payment. But
this is requiring these women to sign
away any future claims they might have
in future civil cases. more needs to be
done to support this new generation who
are finding themselves affected by
asbestos in a different landscape.
So I just want to say for many of those
affected they're currently missing out
on relevant benefits and support and the
complexities involved are stopping them
getting the support they need. In
concluding presiding officer groups like
asbestos action are doing all they can
to raise awareness of these
difficulties. I hope today's debate will
raise further awareness of the issues
affecting those living with this
condition and I will do all I can to
support Marie in any work she takes
forward in the parliament to remove the
the time bar and get these people the
justice they deserve. Thank you.
>> Thank you. To close the debate and
invite Minister Alison Phillis.
>> Thank you very much presiding officer.
I'd like to thank my colleague Minnie
Mer McNair for bringing this h motion to
the chamber today the fifth year that
she has now done so and thank all of the
members both those who spoke and who
those who weren't able to speak today uh
for their presence here and for their
very thoughtful contributions. I think
it's also worth recognizing as Carol
Mockin mentioned earlier on those
members that have previously contributed
to these debates um who are not with us
in this parliament um including Richard
Leonard, Bill Kidd and Jackson Carl. We
are in a new parliament but that really
reflects that this is not a new issue.
It has not gone away. Uh and it is on
all of us now h in this parliament to
continue that fight for truth and
justice that so many have begun. And in
that light, I welcome the campaigners
that have come to the chamber today uh
who have dedicated their lives uh to
this fight. The Scottish government has
very proudly supported action
methyltheloma day and contributed to me
h to members debates now for several
years. And as the new minister for
community care, I'm honored to lend my
voice to raise much needed awareness of
methyloma and of the good work being
carried out by different people across
Scotland. Maththemola
uh is as everybody has said a
devastating disease that continues to
affect individuals, families and
communities across Scotland. It is a
devastating uh and long-lasting part of
our post-industrial legacy not just in
Clyde Bank along the Clyde as we've
heard uh in different parts of the
central belt and everywhere where there
has been some degree of heavy industry
and as others have mentioned has not
gone away due to its presence in some of
our buildings across Scotland. Raising
awareness therefore is vital to
improving uh that earlier diagnosis. It
supports people to access the care and
support that they need as well as
supporting new innovations in research
and treatment. It's well known that
asbestos exposure is a major
contributing factor in developing
meaththeloma and as well as seeking to
prevent exposure to asbestos which has
been banned in the UK as Jackie
mentioned and Jackie Bailey mentioned
since 1999 and ensuring appropriate
medical care is available for those
affected by asbestos exposure. The
Scottish government does remain
committed to protecting individuals
rights to compensation. The current law
on limitation as many uh people have
mentioned which sets time limits for
raising crop proceedings can create
difficulties for people with metheloma
potentially through absolutely no fault
of their own. They might find themselves
unable to raise a case within the
required time scales effectively denying
them access to a legal remedy. The
Scottish government and the Scottish
Parliament have a strong record of
supporting those exposed to asbestos
whether through negligence or breach of
statutory duty. I'm therefore pleased to
be able to today to confirm that the
Scottish government does intend to bring
forward a bill that will give effect to
the Scottish law commission's
recommendations for reform of law of
limitation in relation to certain
asbestos related conditions. I know
Marie Mc McNair especially is thank you
[applause]
I know Marie McNair especially is among
those who have campaigned for such a
change and had asked the first minister
includes to include such a bill in the
first year of parliament. So I'm very
pleased to be able to confirm that we
will do so and I'm happy to give away to
Marie McM
>> delighted. Can I thank the minister for
taking the intervention? Um and I
welcome today's announcement um on the
time bar issue. Um I know it'll be well
received h from asbes sufferers and
campaigners. Um does the minister accept
that on this issue justice delayed is
justice denied and can you confirm how
quickly the government will take it
forward?
>> Minister, I thank her for that. I hope
to be able to bring that within by the
end of the year, but she will appreciate
the parliamentary time scales h will
prevent me from giving me a specific
date so far. Um, but she is correct in
saying that justice delayed is justice
denied and and I hope everybody in this
chamber as well as the campaigners will
welcome the commitment to a bill and the
parliament will be able to support this
bill on a cross party basis. Um, because
as we've heard, this affects people
right across our country and there is no
um party political point to be made on
that front. it affects people uh
regardless. I also want to take a moment
to just to thank and acknowledge some of
the contributions that members have
shared today. A couple of members have
mentioned particularly and Heather
Anderson mentioned this, the barriers to
compensation for women and I do think
that is worth further consideration
because it is difficult to prove in many
cases where that harm has come from and
that's something that we will need to
think further about. Uh Jackie Bailey
mentioned the the case of Scottish
borders uh schools and I won't make a
financial commitment in the chamber
today. She will understand why that but
the point has been noted uh and I will
uh give thought to that. Um of course
Paul Sweeney
>> thank you uh thank the minister for
giving away and I welcome the news on
the proposed legislation as a member of
the law reform committee. It's very
welcome indeed. It's something that's
been hoped for for a long time. Does the
minister share my concern that the
former Cape Marinite factory in
Springburn has been in a state of
chronic dereliction and abandonment for
12 years now with frequently young
people trespassing on the site exposing
themselves to a legacy of asbestos
contamination. Would she commit to
working with me in Glasgow City Council
to try and resolve the long-term
dereliction of that huge industrial
facility in Springburn and try to bring
some sort of regeneration to that site?
Minister.
>> Yes. Paul Sweeney makes a very good
point because a lot of this is wrapped
up in our postindustrial legacy. It is a
difficulty that we have to overcome that
there are these abandoned factories that
people who enter them for whatever
reason, urban exploration or whatever
that might be. Um they don't understand
the risks that they are then exposing
themselves to. Um there are stories of
people in you know adults now in their
own childhood who messed around in sites
with asbestos in it utterly unaware of
the harm that they were placing
themselves in. So it is something that
we do need to consider and the owners of
those per sectar sites and buildings h
have a particular um responsibility to
make sure that they are secure that they
are safe and that they are not being
negligent in exposing people to risk and
I would encourage anybody who is aware
of buildings where there is an odor and
somebody who can be held to account that
that is done so um because there is an
awful lot to be recognized in terms of
holding people to account and that has
been a feature of this campaign uh over
time.
The Scott government continue our
commitment to stand alongside those
affected by metheloma to ensure that
they receive the compassionate care and
treatment that they require at every
stage of their journey and this cannot
be achieved through our NHS alone. I
wish to extend my thanks to third sector
community and social care to industry
and other part partners working
collaboratively to improve the outcomes
for those affected by methyloma. And I
would particularly like to uh extend my
sincere thanks to all organizations who
offer that invaluable help and support
to anybody affected by methyloma and a
best asbestos related conditions. To
meloma UK for continuing to raise
awareness each year through action
methyloma day. Um the Scottish
government will proudly show our support
by lighting up uh in blue St. Andrew's
House and Victoria Key here in Edinburgh
on the 3rd of July to get behind the go
blue for Miso campaign. Um and I would
encourage others who have the ability to
do so to also h light up their buildings
or show their support by dressing in
blue presiding officer. I also wish to
mention a special thanks to the clay
bank asbestos groups who have provided
support to those affected h over for
over 30 years. the work of the lesser
survivable cancers task force who also
support people affected by methyloma. Um
Heather Anderson mentioned as best
action in Dundee and Tay-side and those
campaigners. Pauline Stafford mentioned
the Scottish methyloma network. Colome I
was glad to hear mentioned action on
asbestos who are based in my Glasggo
Central constituency and have done a
great deal of work in this uh campaign
and the support to people as well. And
other members mentioned the Cape must
pay campaign which I would agree um 10
million pounds towards clinical research
and uh trials seems a small price for
such a company to pay and I would
welcome their contribution in that
respect. Um because clinical trials are
being carried out to develop new and
effective approaches to the treatment of
methyloma. Um they're vital in finding
novel ways to treat and detect cancers
early. We know that there can be a
significant delay between asbestos
exposure and symptoms of cancer and I'm
heartened to hear that there have been
several meaththeloma studies that have
taken place across Scotland uh including
I understand four of these which are
currently active and open to recruitment
in Scotland. The Scottish government's
chief scientist officer um aims to
support and increase the level of
high-quality research conducted in
Scotland and has funded research into
meaththeloma treatments and a new
clinical trial called HIT MESO is
assessing the use of proton beam therapy
for patients with unilateral malignant
plural messyloma.
These patients currently face limited
treatment options in protein beam the
beam therapy has been shown to uh give
some pro h promise to uh treating other
thoracic cancers. uh it's more precise
pre precise I understand than other
conventional radiotherapy um and the
team behind uh the trial in England has
begun the process of establishing that
in Scotland
uh while the trials and the others open
to recruitment show show real promise to
people diagnosed with methelium I
recognize the the really devastating
impact that a diagnosis can have on the
wider families and communities living
with me now um so we know that that
diagnosis is a farreaching impact Um,
and that can be particularly true for
cancers where they're they're perhaps
not as as commonplace and feeling uh
individuals isolated and uh alone at a
distressing time. Uh, the Scottish
government's 10ear cancer strategy sets
out a clear ambition. Every person with
cancer is at the heart of decisions
about their care supported and what
matters most to them when they need it.
And the single point of contact pilots
that we have embarked upon are making a
significant difference in making sure
that people get that ability to discuss
their treatment anxieties and their
support. and we've invested 2.5 million
to expand the reach of this program
across Scotland. We're also continuing
to work in partnership with McMillan um
through the transforming cancer care
partnership program which is worth over
27 million pounds and provides patients
with a specialist uh key support worker
to offer that emotional, financial and
practical support to people with cancer
and I would encourage people to go
forward to that service if they need
that support. As members across the
chamber have said, this is not a debate
that is about the past. It's a debate
that is very much in the present. But we
honor all of those who have passed uh
who have not who are not here to see
this day today. Um Tony Worthington,
David Colraine, uh and John McDougall
were all mentioned as as campaigners on
this issue who aren't here today to see
this. We honor their memory by making
sure that we get justice and truth for
for themselves and for everybody
affected by methyloma. I'd like to
extend my thanks to everybody for their
contributions today uh and to all
improved uh to all involved in improving
outcomes for people with mehiloma. Thank
you very much president. [applause]
Thank you. That concludes our debate.
Can I take the opportunity to wish
members their staff and everyone who
works in the parliamentary campus uh a
wonderful recess and I close this
meeting.