Video summary
The DAV Caregivers Support Seminar highlights the often invisible yet critical role that family members, spouses, friends, and children play in a veteran's recovery, independence, and quality of life. While caregiving can be deeply rewarding, it frequently brings significant challenges including emotional strain, physical exhaustion, social isolation, and financial stress. The panel emphasizes that no single entity can solve these issues alone; instead, a robust support network involving organizations like TCARE for burnout prevention, Veteran Debt Assistance for financial wellness, and the lived experiences of veteran caregivers is essential. This collaborative approach ensures that veterans receive the right support at the right time while reducing the risk of caregiver crisis before it occurs.
Financial strain emerges as one of the most pressing yet under-discussed burdens facing veteran families, often leading to a cycle of shame, avoidance, and isolation when bills stack up without adequate resources or knowledge. The seminar illustrates how many caregivers must leave their careers early or reduce working hours due to injury-related needs in their loved ones, which drastically impacts retirement savings and household income while healthcare costs continue to outpace wage growth. Experts stress the importance of normalizing debt conversations within military communities and providing tailored financial education that addresses unique veteran experiences such as PCS moves and transition from active duty. By encouraging caregivers to put aside ego, sit down with their bills, and seek help early rather than waiting until they are overwhelmed, families can develop sustainable solutions before reaching a point of no return.
Beyond the practical aspects of care, the seminar underscores the profound impact caregiving has on children who grow up in households where parents serve as full-time caregivers or deal with trauma from deployment and injury. These young people often face bullying at school due to their parent's disability but possess immense resilience that should not be overlooked by schools or communities. The panel shares heart-wrenching stories of children being mocked for having a father without legs, illustrating the urgent need for intentional community support systems that address both the caregiver and the child simultaneously. Furthermore, the discussion highlights how caregivers often neglect their own physical health until it is too late to assist effectively, making self-care not just a luxury but a necessity; even small acts like taking an hour for a colonoscopy or simply resting can prevent burnout and ensure long-term sustainability in caregiving roles.
Ultimately, the seminar concludes with a powerful call to action for society to recognize, thank, and support caregivers before they reach a breaking point of crisis or exhaustion. The panelists advocate for increased collaboration between private organizations, public agencies, employers, and community groups to improve access to services, payment opportunities for caregiving labor, and legislative protections like HR 6047 that address real needs rather than offering insufficient funds. They encourage everyone present to engage in open conversations about these realities, whether by making a simple gesture like preparing a meal or simply acknowledging the immense effort caregivers put into their daily lives. By fostering peer connections, utilizing technology thoughtfully without losing human touch, and advocating for systemic change through veteran service organizations, society can create an environment where veterans thrive with dignity while their loved ones receive the comprehensive support they deserve throughout this lifelong journey.
Read the full video transcript
Well, I'd like to thank everybody for
being here today with us and joining us
for our DAV caregiver support panel.
Really excited about the opportunity to
share information and get a firsthand
glimpse of the caregiving journey in
objective view through the lens of a
caregiver that's with us here today. And
I'll be making those introductions soon.
And I want to encourage you to be
participatory when we're done. We'll
have a Q&A at the end. So, um, hopefully
we open you up to some things that, uh,
may apply to you that may be part of
your caregiving journey or take some
things from this that allow you to go
out and help a neighbor who may be a
caregiver. Um, so again, thank you for
being here.
As many of you know, caregivers are
often the invisible force behind a
veteran's success, recovery,
independence, and quality of life.
While we rightfully recognize the
sacrifices of those who served, we must
also recognize the family members,
spouses, parents, friends, children who
continue serving along serving long
after the uniform is removed. Caregiving
can be incredibly rewarding, but it can
also bring challenges such as emotional
strain, physical exhaustion, social
isolation, and financial stress.
No single entity can solve all of those
challenges alone. Today, we're fortunate
to have a panel that represents several
critical parts of the support network
that veteran caregivers need. We are
joined by Lindseay Neee over here to my
left, who's a CEO of TCARE, an
organization focused on identifying
caregivers stress and burnout before a
crisis occurs through evidence-based
caregiver support and assessment tools.
TAR's mission is centered on helping
caregivers receive the right support at
the right time and reducing caregiver
burnout.
We're also joined by Angel Torres,
senior vice president for veteran
outreach at Veteran Debt Assistance.
VDA is an organization dedicated to
helping veterans and their families
improve financial wellness through
education, resources, and support
designed specifically for veterans.
Veteran Debt Assistance has partnered
with organizations such as DEV and
focuses on helping veterans achieve
financial stability and independence.
And perhaps most importantly, we are
joined here by Donna Joiner, a
long-erving caregiver to DAV member
Dennis Joiner and triple ampute and
someone who has lived the realities of
caregiving every day and whose
experiences remind us why these
conversations matter.
So, thank you.
And for all of you, thank you for taking
the time to join us here today. And I
really look forward to the interactive
and engaging conversation.
So with that, I'd like to start with
you, Donna. If you could tell us about
your caregaming journey, when did it
begin and how has it evolved over the
years?
>> Um,
my husband and I turn this.
>> Okay.
Um,
well, my husband and I um met in 1979.
We were married in 1981.
And
what
I need to explain is that my husband was
wounded in 1969.
And so he was a disabled veteran for 11
years prior to me meeting him.
um and when we were married. So I don't
know my husband any other way than being
disabled.
So that in itself is something
but um
how it has evolved my my life and his
life and our children.
Um, sometimes it's really hard,
sometimes it's a lot of fun,
sometimes it's
overbearing,
and but you're always there. You're
always wanting to help the veteran.
But
that is basically how our life evolves.
But over the years, when we Of course,
when we were younger, we got to do a lot
more things. We were able to do more.
But as we age, it gets harder
and your life slows down
and
it's just
part of life. But um the caregiver takes
on more and more and more
That's how that goes.
>> Thank you, Donna. Lindsay, TCARE works
with caregivers across the country. So,
what would you say are some of the most
common challenges that you see
facing that veteran caregivers face
today?
>> Yeah. And I was actually talking to my
team about it earlier because the team
and Jan, I'm going to call you out.
Sitting over here is one of our
caregiver specialists. So, she engages
with caregivers all day, every single
day. Um, and we were talking about some
of the common challenges that we see
caregivers needing support with. And
first and foremost, it's financial
financial stressors, navigating health
care systems, um, access to different
benefits,
um, and financial conversations are hard
to have. And so, I think we see that
come up often. we try to get access to
different benefits that are out there.
Um, but it's tough. And then on the flip
side of that, I think one of the common
challenges is just having a community of
peers that you can talk to and connect
to and share the experience with and
lean on and complain about what's
happening that you're not going to say
some of that to your loved one
necessarily, but you need to have an
outlet. So I think those are kind of the
two big things that we see so commonly
come up with caregivers.
>> And Donna, looking back, what has been
the biggest challenge that you faced
that um maybe you did not anticipate at
the beginning of your journey?
>> Um okay. At the beginning of our
journey, both of us worked and um you
know, we have children, so that all came
into play.
Um, but as we get older, we take on more
responsibility
and that gets a little harder. But, um,
my husband
was hurt with his rotator cuff. He had
to have surgery in 2005. So, um, one of
the things I had to do as his caregiver
was to give up my job.
give up my pension,
uh, increase social security benefits,
that sort of thing. So, it does impact
your family tremendously.
So, um, that's about it.
>> Thank you. And you bring up a great
point about the the economic impact that
that is suffered by caregivers. Some
give up full-time employment, corporate
careers, become a full-time caregiver,
some are reduced to part-time work.
you're putting less in your retirement
account. You have less resources coming
in or available to you on account of
that caregiving journey. And you know,
we u the billions of dollars saved by
our caregivers for the healthcare
industry as a whole is amazing. And
health care cost and home care costs are
far outpacing wage growth. So, it's a
it's a crisis. It's an issue and we're
not on a sustainable track. So, really
appreciate you bringing up that point
with that, Angel. Uh when we discuss
caregiver burden, financial strain often
doesn't get enough attention. How
significant is the impact of financial
stress on on veteran families?
>> Can you repeat the I had to echo. Can
you repeat the first part?
>> When we when we talk about caregiver
burden, financial strain doesn't often
get mentioned in that conversation. And
how significant is the impact of that
financial stress on the veteran families
and the care?
>> Oh, it's barely measurable. I mean,
[sighs]
we were talking earlier about this and
when you think about managing veteran
debt or veteran most of veterans become
veterans and they take their debt from
active duty into the uh their vet, you
know, the transition when they become
veterans. So they have that looming and
they have that on their head. Now
imagine well I don't have you guys don't
have to imagine because you got you guys
are many are caregivers and understand
are no caregivers and care about
caregivers
but think about one day you're you're
struggling with your own finances and
then tomorrow you become a caregiver. So
you don't have the skills now but you're
expected to now be able to balance
the financial burden of managing
your finances and someone else's while
simultaneously taking care of all the
other logistics that are involved with
this person. I can't imagine of a bigger
pressure cooker
and the when the bill starts stacking
up, avoidance kicks in. What happens
next? You start thinking about, you
know, self-doubt, feeling bad. I'll
ignore it. It piles up. It piles up.
Doesn't go away. So, who you going to go
to? Who you going to talk to?
not Ghostbusters, but who are you going
to talk to? Seriously. I mean, and I
think that to to Lindsay's point is it's
really important and the burden is very
high to have those resources to be able
to have someone to talk to to vent and
also get good credible legitimate
information from some a trusted source,
someone that tr that works
collaboratively with other public
private organizations and not forprofits
like DAV.
Thank you, Angel. Uh, while we talk
about burdens, Lindsay, I want to go
back to you. Many caregivers don't ask
for help until they're already
overwhelmed. Why is early assessment
intervention so important for
caregivers?
And if you could, I think they're having
a little trouble hearing us in the back.
If you could speak up and maybe hold it
a little closer.
>> Okay.
>> Thank you.
>> Is that better hear us? Okay,
Angel can hear me. Um, so I think it's a
really good question, Ron, and it's
important to have the conversation
because what happens, especially with
veteran caregivers, is you're extremely
resilient. Um, you take on a lot. You're
you're taking on initiative. You don't
ask for help very often. Um, and so many
times a lot of the different stressors
that you're taking on, you don't even
acknowledge or recognize what you're
doing. And so having the conversation
and helping to give it space for you to
say, "Wow, I am doing a lot." And Donna,
I'm so inspired by your story because
you're so gracious about it, but I'm
also very grateful that you're here
sharing because it's normal. You're this
is your life and it always has been with
Denny, but you've taken on a lot and
there are a lot of sacrifices that go
with that. So the earlier that we can
have those conversations and help you as
a caregiver recognize all that you're
managing and recognize that there's
support systems out there to help you
and to alleviate some of those more
proactively.
You're going to be much better off. The
person you're caring is going to be much
better off. And we can have that
continual conversation so that thing
when things do get hard, you know where
to turn. So, I think starting those
conversations early is really
beneficial.
>> Great. Thank you, Donna. Many caregivers
struggle to care for themselves while
caring for others. What have you learned
in that process about maintaining your
own well-being?
>> Um,
a lot of the caregivers don't take care
of themselves. They're always looking to
take care of your veteran. you forget
about yourself.
And that's something you really need to
do because um what I found out is the
older you get, hearts wear out, your
knees wear out, your arms are tired, you
can't lift like you used to. If your
veteran needs assistance,
say getting out of bed
and sitting up, you're not as strong as
you used to be. So, you really need to
take care of yourself.
Um,
people, you know, I have my family
around me and they support me. Um,
but you just need to take good care of
yourself, too. You can't forget about
yourself because if you don't,
you are no good to your veteran because
you can't take care of them and so you
both suffer for that. So please take
care of yourselves
as a voice of experience.
Thank you Lindsay on when we talk about
burnout and you know reaching that point
and it kind of goes hand inand with the
you know being able to care for
yourself. The one thing caregivers don't
have is time is what we run into quite a
bit and
what are some of the ways to that that
you would advise someone or tell someone
to help recognize those warning signs in
advance of hitting that point of crisis
or burnout?
Yeah, I think Donna hit on it really
well. Um, and it looks different for
everyone. Caregiving is an extremely
personal experience. So, everyone's
situation is very, very different. Um,
but when we look at burnout risk, it
spans across physical, financial,
social, mental. Um, and so we really
need to see what area of life is getting
that stressor. You know, kind of the
example of a balloon. When you squeeze
on one side, the other side gets the the
air moved to it. And so, um, I think
it's taking the time to recognize the
different responsibilities that
someone's managing, um, and having the
conversations, just having an outlet to
share because sometimes it requires
outside perspective to realize that
maybe you're not prioritizing yourself
anymore. And something we kind of talked
about uh in preparation for this was
what are some of those signs because
burnout the term is really hard to
define. Um and people normally aren't
walking around you know like h I'm
burning out guys like I need some help.
So, there's ways that we try to educate
and work with communities to help people
notice signs of burnout. Um, which could
be disassociation.
It could be lack of interest in things
that you might have really been
passionate about before. Um, it might be
avoidance.
Uh, it could be financial stressors. I
mean, Angel, I know you're going to talk
a little bit more about this as well,
but making bad financial decisions
because you're so overwhelmed with
everything that you've just kind of lost
common sense in certain areas. Um, so I
think just things like that, being aware
of it, and helping to support each
other, be that friend that somebody can
lean on, um, and just to open the the
door for the conversation.
>> Thank you. and Angel, while we talk
about the well-being of the caregiver,
how should we think about financial
wellness as part of the overall health
and caregiver well-being?
As I'm going to throw it back to Lindsay
for a second. Yes. Um,
when you think about what we have and
what we don't have, what we know and
what we don't know, financial readiness
and financial tools is right at the top
of the list.
And no one is stepping up and giving
people the tools and the educational
format in a language that resonates with
the military community. That's kind of
what we do. Well, that's exactly what we
do. We take the, you know, the best in
financial uh learning and and and we
tailor it to the caregiver, to the
military veteran, to the military spouse
because your experience, the debt you
carry on with PCS movement, all those
kind of things and other expenses,
that's very unique.
And I think that part of the solution is
if so, and we're talking earlier again
what you mentioned is
identifying that when someone becomes a
caregiver that the partners, the
referral agencies are saying, "Hey, you
know what? Welcome to the community and
you probably need to go through this and
you probably need to take this class.
You probably need to be aware for this.
Here are your people. These are the
people you can trust." And by doing
that, we can get ahead and give people
the tools. So they don't get, you know,
into one paycheck from being homeless.
They don't get into the super burnout
because they can't talk to their family
or talk to anybody about the money they
need. Getting ahead of this and building
controls and building pro uh uh
educational uh resources for them is is
so important.
>> And I'm going to stay with you. Thank
you for that. So when we when we talk
about this, it's not an easy topic,
right? And um and it's not about the
shame, but people feel shameful when
they end up in these positions. We with
many families feeling embarrassed uh or
overwhelmed when discussing their
finances. How can caregivers begin
addressing those financial challenges
uh before they become overwhelmed before
they get to that point?
>> Yeah. The most important thing here is
identifying that financial and and
indebtedness and unwellness I guess um
it's in two it's in two parts. There's
the math behind it. The numbers income
doesn't match money going out
and then there's an emotional toll. the
shame which leads to isolation which
leads you know includes um I've had a
entire military career I was a military
spouse in a lot of cases I'm I got this
I got this I got this and all of a
sudden the numbers don't match and what
do people do they internalize what does
that mean it means I'm a bad person I'm
not good I'm not worthy of all these
other things that are just not true I
call it the uh the head trash the things
we tell ourselves that just aren't true.
So part of
finding a solution is really normalizing
that debt is a real thing. This is
something we all face. Just some people
handle it better than others. Why?
Because they've learned more either
because they messed up and made a lot of
mistakes and they learned from their
mistakes or no one ever taught them.
So I can't over stress um how important
that is.
Thank you, Donna. What What kind of
support has made the biggest difference
for you
throughout your journey?
>> The biggest support is my family,
um my neighbors if I need something, and
um having some downtime for me is a good
thing.
And so I go to a group that I belong to
in my church. It's a sewing group and we
um make quilts and such for um kids that
are sick that are in the cancer wards
and stuff like that. And um so that's my
biggest support and my husband is my
biggest support.
>> Thank you. And and that's such an
important thing as respit on the
caregiving journey that we take the time
to care for ourselves. If we hit that
point of crisis or burnout, what good
are we to the care recipient? We have to
make sure that we do our best to take
care of ourselves, practice that
self-care, and be committed to it. And
the other thing I heard from what you
just said is you are at church making me
a quilt. Is that correct? Or
>> Thank you.
See, we all benefit from respit.
>> Ron, one thing we talked about earlier
that I that Donna really kind of lit my
lit my head on fire about is
often the narrative is around it's so
hard. It's so hard. It's hard. Yes, it's
hard. But Donna, you were saying
earlier, you're like, and there is joy
in being a caregiver. There is value.
There's happiness that that accompanies
that. And it really made me go, "Wow, I
love this man. I love this this job. I
love what I do. It fulfills my my
identity. And I it really struck me.
>> That's great. And let me just drive home
this point. Many of you have heard me
tell this story previously. And I I like
to use it to help set the tone for the
importance of our work. And I was at a
convening in DC a few two years ago, I
believe it was, and they had three
panelists presenting. And they asked
them what they would do with an hour of
respit. The first two panelists gave the
typical answer. go to a Mexican
restaurant, sit on the patio, have a
margarita, take deep breaths for an
hour, and not worry about anything. The
third panelist, they came to her, "What
would you do with an hour of respit?"
Her response was this, quote unquote, "I
would go and get a colonoscopy."
I I did the same thing, but within a
second, it made me realize the
importance
of we talk about taking care of
yourself, the fact that caregivers don't
have time. when you get a free hour,
that's what you would go do. I'm going
to go have a beer. I'm going to go prop
my feet up and relax. That's what she
was going to go do. She did not have
time to herself to practice that
self-care, dealing with a
spouse had uh some children that had
some issues that they had to work
through and she's caught in between on
both sides of that. So let that uh
resonate with you when we talk about
caregivers and the importance of our
work and the little things that you can
do that we we often overlook or
overthink that you can make a huge
difference in a caregivers's life by
maybe doing something to allow them that
30 minutes that one hour.
So I just wanted to point that out. Um
Lindsay TKare combines technology with
human support. So, how do you balance
innovation with the need for personal
connection and caregiving?
>> So, this is something I'm very
passionate about because everything that
we do is around enhancing human
connection. Um, and I'm very excited by
the innovation that's happening and the
rapid advancement of technology, but we
have to be very, very careful and how we
integrate technology and digital tools
into what we do. Caregiving is one of
the most human experiences that we are
all going to go through in some
capacity. Either being a caregiver,
needing caregiving.
Um, and many times we experience it
multiple different ways. We're caring
for lots of a lots of people during our
lives. Um, and I think what we're very
thoughtful about when it comes to
innovation and technology is making sure
that we're using it to reach caregivers.
how they want to be reached and
communicated with, helping to enhance
that personalized experience,
closing gaps to access and care and
resources, but always driving back to
the human connection. We can absolutely
never lose that. And um I know Ron,
you're very passionate about that as
well, but we have to be careful in how
we use technology.
Yeah, thank you for that.
>> One thing she was we were saying over
lunch was
developing a solution. It can't be a
one-sizefits-all. Caregiver experiences
are just so different.
>> Yeah. And I'm glad you mentioned that,
Angel, because caregiving, there's so
many levels or approaches. It's not one
sizefits-all. You could be caring for a
a quadriplegic, a paraplegic, TBI,
ampute, PTSD. There there's so many
approaches. Uh Alzheimer's, it's just so
many different things, but the common
bond you have is the the journey itself,
regardless of what level you're at. And
establishing those I think we mentioned
this earlier, the peer connection is so
important and realizing that you're not
alone. And I encourage all of you to to
build upon that uh within your
communities, your networks, reach out to
others that you know that may be on that
caregiving journey.
So uh Angel, let's go back to you. What
are what are some practical resources or
first steps that caregivers can take
today if they're struggling financially?
Ask for help.
Put aside the ego. Put aside the what
what you think is going on inside. Sit
down
with your bills. Look at them. Write
them down.
If the math doesn't work, you need to
call somebody. You need to call us. You
call go to veterandebass assistance.org.
You can get a hold of us. We have
videos. We have YouTube. It walks you
through the whole thing how to get
yourself out of debt.
But the most important thing I can say
is and and it echoes what you were
saying about pure connections. I think
being open and honest and vulnerable
with other people about what's going on
and having a courage to not only sit
down with your bills and and admit this
isn't the numbers problem. This is not a
me being a bad person problem. This is a
numbers problem. And once you're able to
do that and objectify the problem, then
you're able to develop a solution. You
cannot develop a solution from a
defensive posture.
I can't stress that enough. You're not
thinking straight. You're not thinking
clearly. You're you're it's just a mess,
right?
[laughter]
It doesn't translate over to Mike, but
you guys get it. Um,
taking control, asking for help, look
into partners like DAB and and other
organizations that are looking to help
you, and make sure the partners that are
going to help you are vetted are vetted
appropriately. Ask for help.
Thank you, Donna. If someone became a
caregiver tomorrow, what is a one piece
of advice you would give them?
>> One specific advice,
[laughter]
uh, patience. Um,
work with your veteran. You know them
better than anybody else. Um,
it it's a journey for for you both.
They're dealing with a whole lot.
They used to be
fine physically, mentally, whatever,
but they're not yet. So, you just work
together. Uh, that's the main thing that
um I could stress is you work together.
um my husband and I, you know, I always
say he's he's a triple amputee. I'm sure
some of you know him, but um I basically
say I'm his arms and legs. And what he
can't do, I do. And um one of the things
is it's a little story is when we were
painting, I painted high and he painted
low.
Okay. So, just work with your veteran
and if you have some real issues
then um get on the phone, call the DAV,
call T care for financial account angel,
do what you need to do.
But in reality, Ron, I have your number
on speed.
Well,
>> well, for that, Don, I'm gonna put you
on the spot real quick. And
>> and there's something we don't talk a
lot about, and it's something that needs
[snorts]
to be a part of our discussion. And
it's the children that are caught up in
the caregiving journey.
We will do more. We have to do more. We
cannot and will not leave them out of
the equation.
You know, we
we voluntarily many of us in this room
voluntarily served. Some were drafted.
Children on the caregiving journey
didn't sign up for that.
But it becomes their reality.
They deal with the separation. uh when
you know when a parent deploys they deal
with the aftermath and the traumas when
they come home. When children are
receiving mental health counseling,
cutting themselves, attempted suicides,
it's not okay.
We have to and will do more. Um
it's very serious. There's a lot of the
VA uh not to beat them up, but they
don't work with children until they
attain the age of 18. So we need to be
very purposeful and intentional within
our local communities and do what we can
not just for the the families or the
caregiver but the children that serve on
that journey as caregivers as well. And
with that Donna I know we talked about a
story with your daughter u when Denny uh
when she was born and coming up in the
younger years of school. Do you mind
just briefly sharing a little bit about
what that was like?
>> No problem. Um, we have three kids
together. We have two older sons and
then my my daughter. Um, but what he's
talking about is when she was um in
kindergarten,
I got a call from school and the teacher
said to me, um, the kids are making fun
of Kristen because of her daddy having
no legs.
And she said, "We need to really do
something about this because it's very,
very hard." And first off, it's
heartbreaking that, you know, your
daughter is going through this because
he served
honorably.
He was wounded and now people are making
fun of them.
And so anyway, I said, "Oh, sure." I
said, "We'll handle this." I said, "I'll
get my husband to come in and talk to
the kids."
And so that's exactly what we did. And
by the end of the time that my husband
was talking to them,
he they surrounded him. They understood
probably way better than their parents
that he's normal in his own way.
And that's what you have to stress with
a lot of people. But just remember that
our kids take on as much as we do.
And um sometimes it's very heartbreaking
for yourself, but it is for them too.
And they have a lot to deal with. My
oldest son, he said to me when uh
Kristen went to school, he said, "Make
sure that you take good care of her
because kids are mean."
And he had never said anything before
that. But so that's my story.
Stick to it, please. It's um Thank you.
You know, we talk about the peer
connection for the caregivers, having
that like kind, those peer connections.
The same exists for the children. I
mean, what what's our veteran
population? 1% that served. So, when
these kids go to school, the I get tired
of hearing about the schools writing
truency letters and all these things.
And these kids aren't truent. Some of
them are brilliant. We have to take a
step back, realize what they're dealing
with at home,
and realize these are true struggles.
These kids are brilliant. They're
resilient, just pure grit in their
day-to-day grind is being part of that
caregiver or on that caregiving journey.
But we cannot allow their grit and
determination to allow us to overlook
their actual needs.
I mean, we have to do more. I'll leave
it at that. So, I I welcome all of you
to join in on on that piece uh of
support. Um I'm open. I'm all ears. I'll
take suggestions. I'll work with you.
Let's get out there and do this, please.
So, again, thank you.
Lindsay, we've ignored you for a little
bit, so let's go back to you. The What
gives you the most optimism about the
future of caregiver support in America?
Honestly, conversations like this, the
focus and commitment that organizations
like DAV have to bring recognition and
acknowledgement to the critical role
that caregivers play um and the needs
that are very very present um and how
challenging it is to access resources
and services for caregivers. So, I'm
extremely optimistic and excited because
I think the the topic of caregiving and
the caregivers's role is being talked
about at the local level, the state
level, the federal level. Um, it's a
global challenge and so I'm excited for
us to continue to drive that forward. We
do a lot of advocacy work in the
caregiver space. Um there is a lot of
work to do still, but I'm hopeful. Um
and just so grateful for all of you for
even sitting in here and and being
willing to have the conversation with us
because that alone can be challenging.
>> Thank you, Lindsay.
And for all of our panelists here, we're
going to just do some Anybody can pick
these up. We'll ask a couple more
questions. What can healthcare
organizations, nonprofits, employers,
and community groups do better together
to support caregivers?
>> You want me to go? Okay. Uh,
honestly, working together, there is not
one single solution that's going to
solve all the challenges that come with
caregiving. We have to collaborate. We
have to come together. We have to make
access to services better. Um, we have
to make it easier to get paid for being
a caregiver. Um, there's progress that's
happening there, but it's still
incredibly challenging to get access to
some of the money that's out there. And
that goes back to the challenge that we
hear so commonly about the financial
stressors that come with being a
caregiver. Um, so it really takes a
collaboration between private and
public. It takes working at the
community level. It takes organizations
that are boots on the ground getting
into the famil family's homes and
working with caregivers. Um, so it's
really collaborative. We have to have
that collaborative partnership spirit.
>> I think I No, I don't think I know I
agree with everything she said because
she actually stole it from me. She asked
me beforehand and I said, "Say this."
And that's why it sounds so good.
[laughter]
No, I I I agree that the
having
convening people like DAV convening
these events to raise awareness has
already moved the bar so far, but we
still have so far to go.
I think that recently, anybody know what
HR 6047 that bill that was going coming
out was was about? got they were looking
at it was uh addressing caregivers. It
was a uh DIC uh and and the different
amounts that they were going to use to
give the caregivers and to um there was
some uh legislation around that. Some
people thought it wasn't enough money.
Some people thought it was not being
paid for the right way.
I won't get into details, but what I
will tell you is long as we continue to
advocate and use our legislative arm and
use arms like like the DAV and all the
different veteran service organizations
to push a caregiver agenda that supports
and addresses real solutions for every
single caregiver that's out there.
That's how you make the change. That's
how we make things better.
>> We're getting a little tight on time. I
want to make sure we leave some time for
for some Q&A. Um I don't know if it's
fair to ask a question and take it on
myself, but do you think caregivers
receive the recognition they deserve? If
not, how can we change that? No. The
answer is no.
It's it's plain and simple. We thank a
veteran. Let's thank those that allow
them to remain in their homes uh to the
extent possible and and that care for
them day in and day out.
It only takes a couple seconds to thank
a caregiver. But with that said,
caregivers have to allow themselves to
be recognized. And that's a request for
each of you that may be caregivers.
Um, real quick for each panelist, I want
to have each of you answer this
independently
uh in about 30 seconds. What is the one
message you would like every caregiver
in this room to remember when they leave
here?
When you leave here, remember just to
take care of yourself. Like I said
before, if you don't take care of
yourself, you cannot help your veteran.
Yeah. I would say acknowledge and give
yourself credit for what you're doing
and be willing to be recognized, but
also give yourself grace. Um, and just
from me personally, thank you for all
you do as caregivers because it's a
really important role.
>> You are not alone.
That's it.
Thank you all for the participation here
in the the open and candid honest
conversation.
Uh, what do you think?
[applause]
And I I think Lindsay mentioned it.
Having these conversations,
open, be honest. These are real issues.
Crisis, burnout, it's real. These people
have big jobs. You know, those that are
not on a caregiving journey, or maybe
you have been before, or if you've never
been on one, when we go home after a day
of work, we change shoes, we kick our
feet up, have a beer. When a caregiver
comes home for one that's working
full-time, they change uniforms, start
the next job. So, look at it that way.
You know, we we've heard about the
realities of caregiving and the
importance of supporting caregivers
before burnout occurs in the critical
role that financial health plays in the
family's well-being. So, uh take all
these things, continue the conversation
as has been said and I continue to
repeat that. Uh I do want to thank our
panelists here today for uh again taking
the time to be with us.
[applause]
Donna, I love you. I appreciate what you
do for Denny. I've known Denny a lot of
years. Love that guy, but how you put up
with him is beyond me.
It's, uh, it's it's got to be.
So, uh, with that, before we open up for
Q&A,
how many caregivers do we have in the
room?
Thank you. Appreciate what you do.
How many became a caregiver without even
knowing or just in a moment's notice?
It's that easy to happen. We never know.
And and don't discount what you're doing
for those that aren't sure if you're a
caregiver. You could be doing medication
management. You could be doing uh
doctor's office visits, uh
transportation,
uh
homemaking. There there's so many
different things that apply to this
subject.
So, um, again, you want to do something
simple, caregivers don't have any time,
make a meal for them and take it over to
their house. You just save them an hour
or two by that simple gesture because
they don't have time to do it. Not
everybody's food and secure. They don't
always have the time to prepare a
nutritious meal. So, it's a way that
chapters and or individually you can get
involved. So, uh again, I want you to
remain open to those things and and
thank you uh caregivers and for your
participation