Video summary
All Brains Belong is a nonprofit organization celebrating its fifth anniversary with the launch of a new book titled *A Failure of Imagination*, dedicated to reimagining healthcare and community support for neurodivergent individuals. Executive Director Mel Hower explains that her journey began as a family doctor who realized traditional care was ineffective because it isolated medical issues from the realities of daily life outside the exam room. To address this, the organization has built a model based on co-creation with the community, intentionally flattening hierarchies between providers and patients to foster collaborative solutions. This approach ensures that every individual is valued for who they are rather than just their productivity, creating an environment where multiple ways of thinking and expressing are welcomed without judgment.
The profound impact of this inclusive model is illustrated through numerous personal testimonials from community members who have found relief from shame and a sense of belonging. Patients like Paul Mleier describe the experience as life-changing because it treats the whole person rather than ailments in a vacuum, while others like Kim contrast their previous experiences of gaslighting with the validation and hope provided by ABB's listening medical team. Educators and parents share how the organization helped them understand that working differently is not being wrong, replacing internalized ableism with acceptance and improving relationships within families. Even those who do not identify as neurodivergent speak to the honor of witnessing these experiences, noting how learning about structural barriers like employment challenges and medical trauma has made their parenting more compassionate and their understanding of societal needs deeper.
Beyond individual healing, the community actively practices mutual aid and universal design to ensure no one is left behind, whether through helping with transportation, buying supplements, or successfully running vaccine clinics in extreme weather. Small but significant adjustments, such as using open-ended questions or providing multiple lighting sources, are highlighted as essential for building trust and enabling clear communication even when energy levels are low. The organization hopes that the upcoming book will inspire similar nonprofits to emerge in other regions, creating safe healthcare communities that bridge chasms so everyone can participate fully. As the event concludes, attendees are encouraged to take free resources and share their email addresses to stay connected, carrying forward a message of gratitude for the shared work of spreading neuroinclusion and understanding.
Read the full video transcript
Welcome everybody. Um I'm Mel Hower, you
their pronouns, executive director of
All Brains Belong. Um welcome to our
community storytelling.
Um so uh for some of you, you've been
part of this work for five years. Some
of you you're meeting us for the first
time and some of you in between. Um, but
we're a nonprofit here to support the
health and belonging of people with all
types of brains. And we do that in lots
of different ways. Um, coming together
to reimagine health care and community.
We're also really Hey, Susan. Um, we're
also really excited that, um, we are
launching not only our fifth anniversary
celebration, um, but the launch of our
new book, A Failure of Imagination: How
the Health Care System Fails
Neurodyiverent People and What We're
Doing Instead. Um and so um to build a
new type of health care um you know it's
been all of you coming together to
really think about what we want this to
look like and really think intentionally
what could healthcare be and I think
what we've found is we've found a
community and we found a community um
that that that that's where health has
come from as we reimagine what we can
demand and expect from our comm from our
surrounding environments um and how we
can have our access needs met in
healthcare, in workplaces, in schools,
in surrounding community. And so, we're
here tonight to hear from our community
members um talking about what that
process has been like for them. We're
going to hear from folks um both here in
person and um virtual folks um because
there's no right way to participate. Um
and so whether um you'll hear from folks
who get their medical care here as
patients, community program
participants, neurodiversity training
participants, volunteers, supporters,
all different kinds of roles. Um and
I'm excited to hear from you all. Um but
first I want to tell you a story. I want
to tell you a story of Sorry, I'm like
sorry Zoom people. I'm like leaning on
you with my clipboard. Um anyway, um so
I'm a family doctor and when I worked in
traditional primary care, I spent most
of my time in the exam room problem
solving life outside the exam room and
it felt very ineffective the ways in
which the health care system separates
medical care from the rest of life and
seeing the ways in which our patients
were armed in all these other realms of
their lives. um it felt really important
um to do it differently, but five years
ago, I didn't know exactly what that
would look like. So, what we've learned
here is that by asking people what they
need and what they wish were possible,
like we've really cocreated this whole
experience. Um nothing that we've ended
up doing was part of the original plan.
Um and so it's really the idea that
solutions come from those closest to the
problem and that um you know flattening
the hierarchy um between doctors and
patients and really just coming together
as human beings. That's what this work
has been about. Um and so uh with that
um let's let's let's hear from some of
our community members. Um Liz, would you
like to go first?
>> Great. Thanks.
Thank you, Mel. My name is Liz. Um,
I wear a couple of hats in the
community. I'm a community member. Um,
I'm a volunteer.
I'm a parent. I'm a patient. Um, I am
very grateful for this community and for
what this has become.
And I can't believe I get to sit next to
you and say that. that means so much to
me.
Um
um I could I could spend a lot of time
talking about what the community means
to me, but what I want to say and
demonstrate is at at every step of
participation that I've been in, there
have there have been choices, feedback
has been solicited.
Um, when we were trying to
as a as a brain club moderator, we met
prior to this and we were trying to
think what are the questions that we
want to ask and we couldn't even come up
with just one question. We had to come
up with several questions because we
need to include everyone's story and how
they want to express it. Um, and I love
that about this community because there
isn't just one way to do things or say
things or think things or feel things
and
you get to answer the question that the
questions that you want to answer here.
If the answer to your question is
community, if the answer to your
question is knowledge, if the answer to
your question is empathy, you can find
that here. Thank you.
Thank you so much, Liz.
So, next we're going to hear from Sarah
on Zoom.
So, you you'll see Sarah up on the
screen and hear them that way from the
speaker.
in here. Just almost got it. All right.
Uh, hang on. Sorry.
It went fast. Uh, let's see. Um, so why
we need a book launch. There's a lot of
us feeling lower than dust. Subject of
disgust. What do I say? Doesn't have to
be this way. It's not okay. There's a
better way. Could have changed it
yesterday. Should have changed it
yesterday. No way. Yes way. We got a way
and we can start today. No way. Yes way.
We Yes way. Yesterday perhaps we didn't
know the way, but today we got a way. We
still got today. So with our will and
our way, we can start today. Yay for
today. Access needs. Everybody has them.
Having only one way to do a thing
creates a giant chasm. It's a great
loss. Who can get across? It's not okay.
Universal design. Isn't it time all of
us can play in our own way with no one
left behind? Your way. My way. We're
both right. Being different isn't wrong.
That's the point. All brains belong. All
our ways belong. No way. Yes way. We got
a way. There's no right way to be a
person. Mama, tell them there's no right
way to be a person. Mama, tell them
there's no right way to be a person.
Kids connection. Upon inspection, how to
make a friend. No big question. Just let
the kids do what they love. Let the kids
do what they love. Let the kids do what
they love.
No way.
Yes way. Here's the way. The secret
ingredient. So expedient. No behavior
plan. No assessments to attach. Just a
simple match. Find other kids that love
the same thing, too. It's what they do.
So they love the same thing, too. And
then there's two. Kids connection. And
it's a kids invention.
No way. Yes way. We found a way.
Accessibility. Here's the key. Just have
a little chat. Ask the people what they
need. Then do that. It's that simple.
Ask the people what they need, then do
that. Just do that. Make it your mission
first to listen. If you can listen, and
who can't listen? What you learn just
might change your school, your work,
your home, your family, your town, your
state, your life, the world.
No way. Yes way. We found a way. I'mma
please tell them. I want you to tell
them. I'mma help them. Listen, there's
no right way to be a person. There's no
right way to be a person. There's no
right way to be a person because
everybody is a person.
Access needs. Everybody has them.
Universal design. Isn't it time we
bridge the chasm? Isn't it better? Isn't
Isn't it great? We can we can all
participate. It's the way every one of
us can play because I'm quite certain
there's no right way to be a person.
Universal design in our time. Your way,
my way. We're both right. It is It isn't
wrong. Being different isn't wrong.
That's the point. All brains belong. All
our different brains belong. Everybody
counts. Everybody matters. Everybody
gets to give. Everybody gets to get.
Everybody gets to teach. Everybody gets
to learn. Everybody gets to pass.
Everybody gets to turn. It's how we do
right by humankind. It's how we move our
kind ahead. It's how we learn to relate.
It's how we stop the fear and hate.
Enough said.
No way. Yes way. We got away. No way.
Yes way. We got away. No way. Yes way.
We got away. When you believe all brains
belong, there is a way. And
>> I have to close my mouth. My jaw dropped
like Sarah.
I have no words.
That was so incredible. Thank you.
>> Glad I went.
>> Yeah.
>> I don't think I can speak anymore. Um
>> that was incredible.
>> Thank you.
>> Absolutely.
>> Okay.
>> All right. Let's do that.
>> Hello. Well, I have the unfortunate uh
opportunity to be following up Sarah
Canudson. Uh I'm Paul Mleier. I'm also a
patient at ABB. And um when I moved from
the greater Boston area to area to
Vermont, central Vermont about eight
years ago, I wasn't expecting to find
life-changing health care that I
wouldn't get elsewhere. That's what I
thought Boston was for. But
life-changing health care that I can't
get elsewhere is exactly what I found at
ABB.
My introduction to ABB came through a
brain club like it is for so many
others. Uh for me it was in the fall of
2023. And at that time I just felt I had
to finally start dealing with some of
the broken stuff that was inside my
head. And at that brain club, I was able
to hear comforting messages that really
spoke to me and made me want to become
part of the ABB community, which I
didn't know was a community at the time,
but it is. And I became a patient in
2024.
And at ABB, the medical care that I've
received has, one might expect, helped
me learn more about my neurode divergent
brain and how it works. Beyond that
though, it's made me aware of the
physiological
just uh aspects of my health that are
related to the or interconnected with
the neurode divergence. And that was not
something I really expected to find out.
But bottom line, ABB is trying to treat
the person as a whole and not deal with
specific ailments in a vacuum.
And that is a beautiful thing. Um,
I guess the other big part too is that
ABB really is a community. It's both the
staff and the patients.
And I care deeply for this community.
And I really wish that more people could
feel that way about their health care.
So, thank you.
>> Thank you, Paul.
Beautiful.
>> Hi. Uh, I'm Steve Owens. Um, I'm a
patient volunteer with ABB. Uh, I'm also
an educator. I was a princ I was a
principal. I was a teacher for a long
time. I'll tell you something as a
principle I can say is that um if you're
a neur neurode divergent kiddo uh it's
perfectly possible that you'll be
spending some um quality time with me
um and in the course of uh and it is
very different being a principal because
you do spend that quality time with with
kids who are struggling for whatever
reason. And as I was going through that,
I um I really began to identify with
these kids and I started to go through a
process of uh initially, you know,
self-discovery about my um about my
neurotype and uh was seeking affirmation
which I found here at ABB. Um and um I I
just I want to talk for a second about
the um impact that ABB had on me
personally because we talk about
community but that doesn't necessarily
mean uh you know this community for me
it's impacted my other communities and I
and the thing I'll mention is uh uh you
know my relationship with my wife for
example a very small community but um it
really improved things when suddenly we
had an explanation for the way that I
am. And uh you know, I wasn't um I
wasn't a jerk. I wasn't mentally ill. I
was a reasonably healthy autistic person
who um uh just uh didn't align with uh
with expectations. And I'll tell you uh
uh thanks to the the community of ABB,
the experiences I've had, the
affirmation, the neuroaffirmation I've
had of my situation, uh my marriage is
considerably better. And so, you know,
that is uh a uh an unexpected thing when
we talk about community. And then uh my
understanding of myself also has had a
beneficial impact on all of the
communities that I travel in and has and
I'm wouldn't say it's become a lot
easier but it's definitely become easier
because when I understand that what it
comes down to there's a lot of things
that a neurotypical person care cares
about uh like long conversations about
their 14-second cousins that I just
don't give a damn Uh and uh and so
something that's like never happens is
after listening to 45 minutes of that
somebody saying uh oh would you like to
talk a little bit about 12 tone music
theory or the rabbit's digestive system
does not happen but um I think um I
think ultimately neuro inclusion is
going to be a two-way street when we
realize that not everybody's brain
values the things that the majority
value. Um I had a parent up in where I
was principal in the kingdom come in one
day. Her son was well we were kind of
dancing around it but all of us were
autistic sitting in the room and uh she
says to me, "Well, can't the school just
meet him halfway?"
And I'm thinking to myself, "Good Lord,
a 2080 split would be a minor miracle."
But what that looks like, I think, is
realizing that um that there are things
that my brain doesn't do, your brain
does, and vice versa. And just because
I'm in the minority, it doesn't flow
from that. That um that there's
something wrong with me.
Neuroincclusion, I think, is uh
ultimately going to consist of a
widespread uh understanding of that
fact. And um I do think that uh
things like the new book and the
understanding and the educational work
of ABB is going to go a long way towards
uh towards establishing that 50/50 split
that that parent was asking me for. It's
uh it's it's a dream and we're closer to
it thanks to ABB.
>> Thank you. That was that was amazing.
Thank you.
Okay, we're gonna hear from some Zoom
folks. Um, Lizzie, do you w to play the
first
Oh, there's a comment in the chat. We
would love to hear about two-tone music
theory or the rabbit suggestive system
in the chat. Yeah.
>> All right. So, we hear some Zoom.
Ready?
don't think it's necessarily that people
don't want to be inclusive or are trying
to leave people out or make people feel
bad. I think people just don't
understand and don't know. You know, all
brains belong is a message that I feel
like I needed and need to hear. As the
mom of a daughter who's neurode
divergent, you know, I have learned that
the world's not necessarily set up for
someone who thinks um and experiences
things differently. I think it's easy to
feel as a parent that you're being
judged or you're doing something wrong.
It's not you're not trying hard enough.
It's not that you didn't teach well
enough. It's that she needs something
different. So when I learned about All
Brains Belong through my job, I just
felt this like
deep body sense of relief that people
were allowing people to be themselves
and opening up my eyes to the
possibilities of doing things
differently. It feels really exciting to
me to be part of this movement. Gives me
a sense of like hope and that we as a
community, whether that's in workplaces
or in schools or in community spaces, we
as a community can welcome and make
space for people of all sorts, all
different brains.
>> I just got to a point where I was like,
you know, I don't think this is working
for me anymore. Like, I can't seem to
keep up. much of my life I assumed
things I struggled with were my own
personal shortcomings being with ADD has
like shift you know shifted the
conversation I have like what's what's
wrong with me to like how can I how can
I work with the brain that I have not
fitting into somebody else's idea of
what it means for me to be productive I
think the most important thing is it
helps people replace
um that feeling of shame pain with
understanding. Um so doesn't matter if
like you're newly diagnosed or self
questioning
or that you even know that you're been
neurody divergent for years. Uh it's
powerful to find community. You're not
you're not broken. You're you just work
differently.
>> A lot of other doctor practices treat
you like you're hypochondric if you have
all these different ailments. Most
doctors are like, "You can't possibly
have all this stuff wrong with you." And
you guys know 100% that yes, you can.
And you do, and let's fix it the best we
can. And it's the greatest gift I've
ever received. All these other patients
that I'm with in different groups, my my
healthc care family, it helps you
connect and and be at ease with these
people. you you guys have just really
royally changed my life. When I get
sick, sometimes I'm really flaring. I
get really sick and I can't do anything.
You know, it affects you mentally and
then you get depressed and you you start
to lose hope. But then then I go, "Oh,
wait a minute. I can call you guys up."
Even if the ailment itself can't be
erased out of my body, everything is
better knowing that I have that I'm
going on that solid that I have to go to
when I need help. And it's the greatest
gift.
>> What I've learned from kind of working
in public health is and as an EMT is the
health system really defaults to serving
whoever fits this very specific mold and
everyone else gets left to figure it out
on their own. So neurode divergent
people are told to constantly adapt um
to this system that just was not built
with them in mind. And I think ABB
really flips that and that has just an
absurd amount of value. Exactly why I
wanted to get into public health in the
first place and AB is doing that right
in my backyard. So I knew I wanted to
get involved. It's proving that healthc
care and community or belonging
shouldn't be thought of or solved for
separately. I think ABB treats medical
care, health care, social connection,
wraparound support, and education all as
one integrated uh thing and approach.
And that's because for the people that
ABB serves, that's how it works in real
life. Um, and so it's it's creating and
then acting on that really important
model. It's it's that holistic
wraparound support approach. I love all
brains a lot. I can show up as my true
self
>> cuz really all brains belong and I honor
that. So this is my picture.
Um, I like my friend and I saw her
stuffies and my kittens
and yeah,
and I like playing with her and she
showed me how to make a paper airplane
and I sold her my Hello Kitty bean bag.
>> Before finding ABB, it's really really
struggling with a lot of executive
functioning skills and
Frozen.
I'm going to
But the mic's coming from here. I'm
going to stop this share.
Okay. I think
we may need to resume the rest of that
video shortly.
Okay. All right. Um,
yeah, we'll start at Heidi's, please.
Okay, Lizzie, let me know. Do you think
that Do you want to try that again
from Heidi?
>> Sorry about that. My Zoom crashed. Let
me start back with Heidi.
>> Awesome.
Kitty bean bag
>> before finding ABB was really really
struggling with a lot of executive
functioning skills and of regulation and
workplace demands all and and parenthood
demands like all crashing down on me. So
it was it was pretty chaotic. It's like
it's drastically it's wildly different.
It's wildly different in just like every
layer of my life. Like it's not just,
you know, that I, you know, received a
diagnosis and I'm I'm now receiving
healthcare related to my diagnosis like
which is true, but um and hard enough
these days, but I I'm living a better
life. Like I'm living a better life. I'm
happier. I'm healthier. I'm more
connected to my community. I'm more
connected to myself. Um,
it's funny like I have to say this uh
every time I get off a ABB group uh
meeting I say something to the effect
it's not always this but something to
the effect of like oh man like that's
the way life could be. people are valued
for just like being people and you know
you what we're bringing to the table has
nothing to do with like how productive
we were that day or blah blah blah you
know having one environment where like I
am continually reminded that you know
I'm not broken there's nothing wrong
with me at all um I am existing in a
world that was not created you know for
a brain like mine um and being asked to
do ridiculous things like you
exists in an impossible world and that
it doesn't have to be that way. And
there are places where it's not that
way. And there are places, you know,
even in my day-to-day where I can change
things to make it more that way, both
for myself like and everybody because
everybody freaking benefits like
>> Yes, that is so true. And um like I
think that's what's really standing out
to me so far, what we've heard from so
many of us is just like everyone
benefits. It's not just neurody
divergent people. It's everyone benefits
from having multiple paths to
participation. I think that's what we've
that's what we see here. I'm going to
pass the mic to my colleague Sierra
Miller.
>> Hey everybody. Um I'm Sierra. I am a
family nurse practitioner who works at
All Brains Belong. Um,
I feel ridiculously lucky to have this
community, not only as my community, um,
but also be able to work here. Um, I
think it's really
there's a lot of things that are really
special about it. But seeing how
seeing how little things can really make
a big difference to change and how easy
some of these things are to do. Um, I
remember when I we first started asking,
would you prefer open-ended questions or
not open-ended questions and like how
gamechanging it was to have that
information
before starting a conversation and
starting to try to build a relationship
with somebody and how easy those little
things or having three different
lighting sources in an exam room or
starting every community event with a
community agreement so everybody kind of
gets settled in and knows the ground
rules and has a little bit of a routine
at the beginning. These things are don't
don't take that much and can really be
done in a lot of places. Um, and it's
it's amazing what what a difference it
can make. Um, I think the the other
thing that I've been thinking a lot
about is how special it is to
really kind of embody
patient centered care, for lack of a
better word, I guess. um in the sense of
trusting people as the experts in
themselves not only in their health care
but also in an organization. Okay, we're
doing we're an organization that is
working for people in this community.
We have to trust people in the community
to know what we need. Um, and building
from that and
again seeing how that kind of builds out
from healthcare and community
organizations and educational programs
and how when everything really is based
on that we you can make you can make
differences because people are people
are bought in, people are interested,
people are people are getting what they
need.
>> Yeah, that's it.
>> Thank you, Sierra.
him. Do you want to go next?
>> Yeah, please. Or we could bring the mic
to you. What do you prefer? Okay.
>> Should I just sit down?
>> Hi, I'm Kim. Um, I first got involved
with All Brains Belong through attending
brain club sometimes, but it was several
months after that that I had the really
negative medical experience that was the
impetus for me joining here as a
patient. I had seen a new nurse
practitioner at my old medical practice
right after having received my uh
neurode divergent diagnoses and having
those added to my medical records. and
the nurse practitioner gaslighted me
saying that the medication side effects
I was experiencing were impossible to
have. So I was in shock by how I was
treated and I knew I needed a change.
When I started as a patient at ABB, I
was shocked in a different way by how my
medical team listened to me, believed
me, and validated me. At an appointment
where I mentioned those same medication
side effects that I had uh had with my
old medical practice, I was immediately
met with a response that of course my
experience was real and also that side
effect was not uncommon with many
neurode divergent patients like me. When
I described struggling with fatigue for
a long time, I was told that that too
was real, understandable, and common.
And actually there were lots of things
to try to improve that fatigue. I didn't
have to work to convince anyone that my
symptoms or my experience were real. I
was surrounded by people who experienced
the same thing.
Now, it would be a tidy story if I said
that coming to ABB fixed all my health
problems, but that's not the case. About
6 months after I became a patient, I got
CO for the first time and I've been
disabled by long CO ever since. And I
have to say that being an ABB patient
now that I'm quite sick is where this
practice in the community has made the
most difference in my life. Long CO is
awful for sure, but a big source of the
suffering for most patients is the lack
of medical care, the lack of doctors who
believe them and isolation.
But for me, even though I'm chronically
ill, being connected to ABB has helped
this period of my life become one of
enormous healing. I have a medical team
and community that are supporting me in
learning to rest to accommodate myself,
to listen to my body, to set boundaries,
to prioritize my health, and to have
hope. For most people who have energy
limiting illnesses like long co, it is
so easy to disappear from the lives in
the world we used to have to become
invisible. But I have hope from all
brains belong. Yes, because I have
appointments at least once a month and a
growing list of prescriptions and
supplements. But mostly, I have hope
because I am seen by the people here.
Because I know that my experience is
real and valid and it matters. And
because I'm not alone.
Thank you, Kim. Thank you for sharing
that.
Aaron, do you want to go next?
We can bring you Mike.
I'm Aaron. Uh, okay. Uh, Aaron, they
them pronouns. Um, I'm so excited to see
this book get out into the world. um
really because
too many people and communities don't
have access to organizations like All
Brains Belong directly. I find myself
talking to people in other states and
being like there's this really cool
organization that you can't be part of
very easily except maybe on Brain Club
online. Um and because I don't see this
happening in other places and none of my
friends or family do either. And um I
feel like a lot of the things you do are
very easily replicable if people just
you know listen and explore some of the
Yeah. or replicable in different ways
too. But I feel like it's a really great
starting point uh that can be used in a
lot of places and that's one of the
things that excites me. I think when I
first came to All Brains Belong, I had a
lot of work to do in that All Brains
Belong helped me with, you know, I think
in just understanding my own
internalized abbleism and how I think to
overcome
that. Um because uh
I think understanding essentially
identifying what is my own
responsibility and what is really a
societal responsibility that doctors and
lots of practitioners keep placing on us
as individuals.
Um is was really helpful. Uh and uh I
think it changed a lot how I interact
with public health systems in general
not just with all brains belong. um to
see sort of a dis different system
modeled. Um and uh
one thing I really love about All Brains
Belong is um I think you the
organization's vision to see all to see
so many roadblocks and not just to focus
on okay here's your medicine go home. uh
but really there are so many roadblocks
and I think you know as soon as you get
involved you can't really it's you can't
not see them and uh but also it would
feel really disingenuous to just address
try addressing one of them and then
assume that the problem will go away. So
it's really unfortunate that we have so
many but we really do have to address
Yeah. We really do have to address
shame. We really do have to talk about
employment. We really do have to talk
about community and create community and
we also have to deal with so many
structural barriers and those things
aren't can't really they just can't be
we just can't talk about them or address
them alone and that's one thing I really
love about thinking about a medical
model that incorporates all of those
things.
>> That's it.
>> So well said. Thank you.
Um, Lizzie, do you want to play the next
batch of virtual
stories
that way? And when I couldn't, after a
while, I'm just like, I'm I'm alone.
Your role in the community is making it
possible for us to get healthcare. Like
now that I'm sick, I've never been sick.
It is so freaking
hard to get healthcare. I mean, it it
it's not just I mean, it's punishing.
It's spent my whole life in therapy like
freaking And it isn't neurotic. I
thought me like losing my
temper and being difficult and all these
things that were different than anybody
else in the world.
I thought it was because I was um
there was something uniquely wrong with
me.
I thought there was some I thought there
was something uniquely wrong with me.
And I don't know why
I learned that, but it's it blows my
mind that I'm not medicine is a modern
thing. Making teaching me about myself
is by far more important than medicine.
All brains belong gave me another
explanation for it. I've met a lot of
other autistic people. When I say
bad things about myself, when I'm like,
"Oh, I always do that. It's because I'm
lazy or because I'm
They correct me. I'm learning that
humans aren't dangerous. We understand
each other.
>> Like when we connected with all brains
belong, Mel and Sierra helped talk us
through the things that were happening
in our family. We don't have the hours
and hours long marathons that we used to
have because we we understand and can
talk about some of the the root causes
um of of what goes on when someone's not
getting their needs met. This deep dark
weight of of a mainstream culture that
does not understand was removed. You
specifically create opportunities for
all brains belong patients to connect
with one another. So that unlike the
normal conventional medical system where
everybody's put in a in a box looking at
their phones in the waiting room having
five or 10 or maybe 15 minutes inside
that quick medical appointment. They're
alone
and then it's back to them and maybe
Google or something. And whereas we feel
like we're part of a community of people
that all have a different facet of an
understanding and we can reach out.
That's that's been amazing.
>> I felt like I was floundering just out
there by myself and trying to figure out
how to navigate
all these different conditions and
neurody divergence and how to make sense
of all of it. And then Albrin showed up
and it was like a one-stop shop for
everything that I felt alone in. I am so
thankful that a community exists where I
feel like I don't have to explain
myself. I don't have to put in filler
details. Um I don't have to explain why
something hurts the way it hurts today.
Um, I can just show up and be who I am
and all with all the experiences that I
live with every single day and somebody
gets it. And and I it just and it's not
just like one person. I will see people
nodding their heads in agreement and it
it feels so good to
feel like I matter, like I I'm seen. And
um so many of these things that we live
with are it's so lonely to navigate them
every day and advocating for our
families and for our needs and you know
it's such an exhausting process and
finding all brains was like gh it's just
like a little sanctuary like I could
just when I show up here I can just
there's so much space to breathe. It
gives us a voice and we get to share our
experiences. Um, the nitty-gritty, the
hard, the the joyful things, the happy
stmming. Um, all of it gets to have a
voice in this community and it matters.
And it's not just like a wimpy little
voice. It's like unapologetic. We get to
have an unapologetic voice.
ideas and energy and drive comes from
the people up rather than um you know
this top down where it's being dictated
to you what you should be doing or not
doing or how you should be doing it. Um
part of why I'm really enjoying being a
part of all this this journey is because
the the kernel of what you're doing
feels so common sense, right? It's just
so easy and is if you're able to pass on
the word as much as possible, you know,
I can picture like, you know, 10 years
from now, at least four or five other
practices like yours would be amazing,
right? Um all over the, you know, all
over the country or wherever. Like I
think that would be really really great.
Really great. Yeah. And for people to
even know that it exists, they're like,
"Oh, I can I can actually seek out
practices like that. I don't have to
stay with this thing that I don't feel
good about." I I didn't feel like I
could talk about myself in any kind of
deep way until I got involved with ABB
really.
I mean, it just like it spoke to me
immediately as something that like, you
know what, Winnie, you're going to be
50some at some point. you're going to
need to be authentic with people. Why
not start right now?
>> How do we make progress if we don't try
things? What really matters to me about
ABB personally, just the overwhelming
evidence that the standard procedure in
healthcare um doesn't meet the needs of
all people, certainly neurode divergent
individuals, and that creates this
negative feedback loop that is a
lose-lose for everybody. It's a lose for
the patient, but it's a lose for the
system. You know, they're not having
positive outcomes, which impacts their
staff. It's not just unfortunate, it's
hard to watch. It's painful. A really
important role in ABB is not but as a
demonstration project which the world
needs. Needs a model to work from needs
somebody to take that chance. It's
prideful to be part of something that is
developing that is doing cool and
interesting stuff and trying to fix
problems even if not everything sticks.
It it makes me hopeful. people's
excitement and action. Um, advisory
board members, community members, and
people's engagement across all of the
different groups. Um, both like formal
committees, but also like service
offerings and also just like informally
and donors. being part of something
bigger than yourself. Arguably a core
innate evolutionary, you know, mind
construct, being part of a community
that that get it.
>> Thank you everyone. Um Olivia, do you
want to say anything?
>> Hi everybody. Hello. Hi, I'm Olivia. Um,
I'm the patient care coordinator at ABB
and also a patient.
Um, and I was trying to think about what
I could say that hasn't already been
said. And um, it seems like everyone is
really doing a good job um, of getting
the the message across, but um, uh, it
really is um, about all about community
and making everybody feel a part of and
safe um, to be their authentic self. And
I'm learning that every single day. Um
to be more and more myself. Um
and
you know the that saying you know the no
one's safe until we're all safe. Um and
I really you know believe that at ABB we
are trying to do that and we're always
improving and wanting to do better. Um,
and that's pretty amazing. And the
community, all of us showing up for each
other like every single day, like kind
of I mean, I know we do, so it doesn't
surprise me, but um it's impacts me
really deeply when, you know, we show up
and buy supplements for each other and
and supplies and take care of each
other. And, you know, if you if you're
not able to get to a vehicle or
appointment, everybody wants to help you
get there. And um and like number one is
we don't want anyone to feel alone. Um
and yeah, and our vaccine clinics, I
mean that's pretty cool, too. We get to
have these like outdoor or indoor
vaccine clinics um where you get your
needs met in what a way that feels good
to you and you get your your vaccines.
Um, and even if it is minus
30°, we we're still doing it, right?
Yeah. So, anyway, I think that's all I
going to say. But grateful. Really
grateful.
>> Thank you, Olivia. Thank you.
>> Connie, did you want to say anything?
>> Amazing.
Great.
just go from the heart.
>> I will.
>> Hi,
my name is Connie Beiel and I'm on the
board for All Brains Belong. But I uh
speaking of vaccine clinics, that's how
I came to know ABB and I saw my
daughter's needs um not you know it
started with my daughter and then with
with me and we've both uncovered an
awful lot about ourselves together
through ABB. Um and I think I think it's
just it is a gem. We are so lucky in
Vermont to have have community like this
that is both healthc care and belonging
and purpose and I've
felt like this was the first experience
of belonging that I I had and my family
had. Um even listening to the stories
tonight and I can sit here and twirl my
hair because that's what I do when I'm
thinking. So, I I just appreciate being
held by this community and hope that
that you'll always feel that way, too.
Um, and
I I think there's so much that this book
brings that we can't even begin to know
yet. It's just a sort of this new
journey I I think that the organization
is on and it's just exciting to imagine
where it will take us and like the the
larger us. Um so thank you. That was
amazing. Thank you.
Um is there anyone else either in person
or on Zoom who had um who had wanted to
share? Um I see a comment in the chat.
Um, oh, thank you. Uh,
um, Katherine says, "The rest of us, um,
are lucky to be welcomed into this
community from afar." Yeah.
So glad you're all here.
Um, was there anyone else who wanted to
share any
reflections of what it's been like to be
part? Are you putting on socks because
you want to come up here? No, you're
just putting on socks. Okay, great.
Hi Ann, go for it.
Oh. Um, you might still be muted.
Can you
And are you typing or Oh, there you go.
>> No.
>> Yeah, we can hear you.
>> Okay. Great. I just want to say I wish I
could be there in person because I want
you to know that you're all like my
famous people. I don't know how else to
say it. Like it's I want to it's like I
want to meet you in person. I can't even
describe it. So all I can just really
say is thank you. I just this community
I might have started about a year ago
and I've just learned and grown so much
and have just such a different
understanding and appreciation of my
child which is the reason I connected
with this organization or this group and
I just feel like I'm so indebted to all
of you and the work that you do and I
honestly would love to meet all of you
in person someday just because I don't
think I can express how thankful I am.
And for lack of anything else to say,
I'll probably stop there because I could
become a babbling fool. So, thank you.
>> Oh, Ann, that was beautiful. Thank you
so much,
Emily.
You unmuted and remuted.
Try one more time. There you go.
>> Okay, there we go. I thought I had it.
Um,
I just wanted to share that as someone
who does not personally identify as
neurode divergent. It's such an honor
and a gift to be able to be involved
with All Brains Belong and to
bear witness to what you've created and
for me to have the opportunity to learn
what so many of my fellow human beings
on this earth are going through in their
everyday lives that I was never aware of
before. I had no idea about all those
barriers and roadblocks and
interconnected health challenges and
just so many things that um as someone
with a more neurotypical brain, I I just
didn't know about that. And my life is
so much better now having learned and
and ongoing learning in the future um
from All Brains Belong about the
diversity of human experience. And I
really believe that
everyone's um everyone's brain is
valuable and important and that to be a
resilient species, we have to have
diversity and to hear all voices. And
that's a view that I readily understood
about the natural world, but not as much
about the human world until
I got a new paradigm from All Brains
Belong. And it's also allowed me to
parent in a different way that's uh much
more compassionate and effective. So
kudos and thank you. And I'm thrilled
that this book will carry some of those
messages out to other places because we
don't all get to have Mel and Sierra and
Olivia and Lizzy.
But the lessons are applicable to so
many other places and I'm really excited
that more people will have access
hopefully to this kind of healthcare.
>> Beautiful. Thank you, Emily.
Um, back and K.
>> Hi. Um, Beck's here with me and our dog,
of course. Um, I was meant to come today
to take pictures actually, but um, I'm
sick and wasn't feeling well enough to
like be in person, but emailing Mel
today, I already like I knew that you
would understand. It wasn't like bailing
last minute cuz I was nervous or
anything. It's like my health takes
priority and a lot of people don't
necessarily understand that or like what
pacing looks like. And before All Brains
Belong, I was in college stuck in a
cycle of going to college and then
having health issues and then going on
medical leave. And I did that twice. And
then I was like, this is not working for
me. and Mel and Sierra helped me realize
that that's college doesn't have to be
for me and it doesn't have to be my life
doesn't have to look like what I
pictured it before I got sick or that
I don't know that my life might look
different than other people's but that's
not a negative thing and I've been able
to I've only I haven't even been at All
Brains Belong for a full year yet and
I've been able to get involved behind
the scenes help Mel promote their book,
which I'm very excited about. Um, it's
been really nice to find a community
that implicitly understands what it's
like. I feel like I had friends in like
high school and they didn't really
understand what was going on with my
health issues. I'm like, I don't know
how to like not bombard you with my full
medical history. Um, like it's
complicated, but um, and I don't know. I
don't want to put that on you like to
here's my like whole story, but people
who get it and understand that it's
complicated. It's not linear. Like it's
it's nice to have people who already
understand and are able to support and
um I don't know, it's been really
helpful and I'm glad that I found All
Brains Belong.
Thank you, Kay. I'm glad you did, too.
Thank you.
Um, I'm gonna read um a reflection from
Alvar in the chat.
I meant to write a poem, but I didn't
end up having the proverbial spoons.
Normally, I wouldn't submit anything if
I wasn't able to write exactly what I
wanted. Writing poetry brings me
pleasure, but I must admit my obsession
with finding and then using exactly the
right word is not simply a part of my
creative process, but assuredly partly a
trauma response. Navigating healthcare
has always been difficult and I have
quite a lot of medical trauma because of
it. While I'm not able to be an ABB
patient since I live on the opposite
side of the US, ABB's All the Things and
Weekly Brain Club have made a
significant impact on how I navigate
healthcare and accordingly on my life.
While I still stress about finding and
using just the right words when
preparing ahead of time for a medical
appointment, there's a bit less pressure
on me because me and my providers have
some shared language, including
diagnosis now, thanks to AB. And when
I'm at brain club, saying exactly what I
mean is still my goal and preference
because clear and direct communication
is how I want to communicate and be
communicated with. I feel comfortable
enough to participate even if I don't
have the energy to perfectly articulate
myself. And for that I am perhaps
equally grateful. I look forward to many
more years of EDB and I must admit that
I very much hope the soonto-bereleased
book will inspire a similar nonprofit to
be developed where I live so I can also
access healthcare in such a safe and
understanding community. Oh, that was
beautiful. Alvar, thank you so much.
Um, Anna Rose, I saw your hand up
before. I don't know if you were if
you're still here and if you wanted to
share
it's okay if not
that's okay. Okay. Um well um thank you
all of you. Thank you um for for being
part of this, for believing in this work
um and making all of this possible. Um
so um
>> hey Mel, Anna Rose, I had just put a
message in the chat that maybe just if
you
>> Oh, great. Thank you. Okay. Um Anna Rose
says, "I have so much gratitude for the
ABB community." We have gratitude for
you too, Anna Rose. Thank you so much
for being here.
Um, so with that, thank you all so much
for being here and being part of this.
Um, if you're new to ABB and you want to
learn more, we have some flyers and
resources, free resources over on the
table. Um, you can leave your email
address, we can send you more stuff to
take home with you. Um, and thank you
all so much for being here. Thank you
for your ambassadorship and carrying
this work forth into all the circles
that you travel in. Um because now we
know what's possible.
Thank you everyone. I hope you have a
good night.