All Brains Belong VT - Brain Club: Burnout Prevention in Healthcare 8/18/2026
Watch on YouTubeVideo summary
The video features a panel discussion from Brain Club focused on preventing burnout within healthcare by fundamentally reimagining how systems are structured to support both patients and staff. The core argument presented is that burnout is not merely an individual failing requiring personal self-care, but rather a systemic issue rooted in traditional business models that prioritize volume and profit over patient well-being. Panelists emphasize that the current healthcare system often functions as a "villain" that thwarts everyone involved, necessitating a shift where the onus for sustainability lies with the organization rather than the individual worker. This approach requires dismantling hierarchical norms found in large corporations and instead fostering an environment where staff access needs are central to operational design, ensuring that clinicians have the bandwidth necessary to provide high-quality care without running on empty.
A significant portion of the conversation addresses the concept of "access needs" as a foundational element for creating a sustainable and neuroinclusive workplace. The panelists describe their organization's unique model where systems are built from the ground up to accommodate individualized access needs, contrasting this with traditional settings that demand rigid adherence to arbitrary rules. For instance, they discuss how electronic medical records and note-writing processes have been redesigned to reduce cognitive load, allowing staff to work asynchronously and in ways that align with their specific neurological profiles. Furthermore, the discussion highlights the importance of transparency; when organizations openly explain *why* certain procedures or forms are necessary, patients are more willing to participate, transforming what might seem like an arbitrary burden into a collaborative community effort where both patient and provider needs are mutually respected.
The dialogue also critically examines the erosion of trust between marginalized communities and the healthcare system, particularly in light of historical mistreatment and recent events like the pandemic. Panelists recount experiences where institutions failed to provide adequate protective equipment or listened to patients' concerns, leading to a deep-seated distrust that makes community engagement difficult. They argue that successful healthcare delivery requires breaking down silos so that leaders understand every aspect of the operation, from dishwashing to patient care, ensuring that decisions are made with empathy for all roles involved. By co-creating treatment plans and offering patients menus of options rather than dictating actions, the organization fosters a culture of safety and autonomy. Ultimately, the conclusion is that true healthcare reform involves building a community where everyone feels valued, safe, and capable of thriving, proving that caring for staff and patients are not competing interests but interconnected necessities for a functioning system.
Read the full video transcript
Hello everybody. Welcome. I'm Mel Hower.
I use she they pronouns. Welcome to
Prink Club.
So tonight we are going to be talking
about burnout prevention in healthcare.
And you're going to hear from a group of
our staff talking about how we have um
endeavored to build a healthcare
experience here where we are thinking
about caring for our patients and for
each other and really trying to reframe
those and and this isn't just in
healthcare. It's everywhere, right? like
the self-care narrative that says that
the individual has to do things to take
care of themselves when really this is a
systems problem. So, we're going to talk
about how do we build a system that
takes care of people um and puts the
onus on the system as opposed to the
onus on an individual to fight a system.
Before we begin, close captions are uh
enabled. You just have to turn them on
if you want to use them. Depending on
your version of Zoom, you might see the
live transcript close captioning icon.
If not, look for the more dot dot dot
and choose show subtitles. You can also
do the same and choose hide subtitles if
you want to turn them off. Um, welcome
if you're new to All Brains Belong. Um,
we're here to support the health and
belonging people with all types of
brains and we do that in lots of
different ways, including brain club.
So, we're really glad that you're here
being part of what we're doing. Brain
Club is our education program where we
demonstrate ABB's approach to
neuroinclusive culture and where we try
to shift broader community awareness of
the issues of concerned importance to
our community. It's also a space where
we broker alliances with other
communities who come to learn so that
we're hopefully promoting new ways of
thinking and being and then everyone
takes this forth into the rest of your
lives and that's how culture change
happens. Everyone's welcome here at
Brain Club. nerd diverent people, people
who support neurody divergent people,
people who are exploring their neuro
identity, and anyone with any type of
brain who wants to learn about
neuroinclusive culture. There are
multiple right ways to participate here.
You can have your video on or off. Even
if it's on, we don't expect anything of
you. Uh feel free to walk around or
fidget or stim or eat or take breaks or
anything else that needs doing.
And uh this is for education purposes
only, though, you know, we're going to
be talking about healthcare and the
healthare system. Um, this is not for
medical or mental health advice. It's
not a place, it's not a support group.
It's not a place to discuss one's own
trauma um or make individualized
requests. Um, and uh we we keep the
focus on bright spotting. Um, figuring
out what's going well and carrying it
forth. Um, when we do critique, we crit
we we critique systems. Uh, we do not
blame or shame or bash or criticize
groups of people. So, we invite you to
listen to learn to observe a
neurocclusive space. Maybe pick up some
new words and concepts and think about
how what you hear connects to your life.
If it's your first time at Brain Club,
keep coming back. It might take a couple
times to figure out the space and how we
facilitate it. We recommend observing
the first time or two. And Lizzy's going
to put some frequently asked questions
in the chat. Um during our panel, we do
automatically mute everyone until the
panel ends so that there are no auditory
distractions and people don't have to
worry about keeping an eye on your mute
button and all that stuff that you know,
you lean on your keyboard the wrong way
and it turns on. So, you don't have to
worry about that. Okay. Thank you to the
Alchemist for sponsoring tonight's brain
club and thank you to all of you for
supporting brain club, making it
possible for us to be here. Um, running
on almost 5 years.
So, um, to preview next month at Brain
Club, we are going to be looking at
reimagining systems. Um and uh you'll
you'll you'll find out on the next slide
why um why we're calling this the theme,
but we're going to talk about systems
change throughout the month. And uh the
reason that we're calling our month
theme of Failure of Imagination because
our new book of Failure of Imagination
is now available for pre-orders. Um and
Lizzy's going to put a link in the chat
if you want to check it out and see what
it's like. Um it'll be available for
print book and ebook. There will be an
audio book, but pre-orders for the audio
book have not yet started. This book
will be released later in the fall. Um,
but we're going to be uh starting the
process of unpacking it in September and
October and looking at some of the
themes and resources.
Um, next week we do not have a normal
brain club. In the same time slot um as
brain club, we have a special book
oriented event for folks who um are part
of the pre-order community. um a book uh
question and answer with me and our
team. And Lizz's gonna uh Lizzie has
already put the link in the chat for
pre-ordering. Um but we will be back on
September 1st, the following week uh
resuming uh weekly brain club.
So um I always say this, I always offer
a disclaimer when we have healthcare
focused brain club sessions. Um because
of course uh there's lots of people who
have had lots of bad experiences in
healthcare both as patients and as
clinicians. And so we just um we like to
name that we invite you to you know do
what needs doing, take care of yourself.
If thinking about healthcare is really
stressful and you take breaks like um
all all of that is valid.
We know that the status quo of
healthcare for neurody diverent people
is not good. We know that neurody
divergent people often struggle to
access health care and often struggle
with high rates of untreated health
problems and higher rates of chronic
illness and premature death.
And um part of our work here is in
reimagining health care is to try to
make an impact on that to be able to
offer accessible health care um informed
by you know the medical conditions that
are more common for neurody diverent
people. And when we think about the
people who work in healthcare we've
covered this at Brain Club before. We've
had community panels um of of of
healthcare workers talking about how the
system it's really it's it's it's the
health care system that is the villain
here and it thwarts both patients and
clinicians alike. Um so tonight we're
going to be hearing from a panel of our
staff at All Brains Belong sharing what
we've learned. This panel was recorded
um about a a little over a year ago and
so we'll be revisiting this conversation
um see what what what's changed and
what's the same. Um but the idea of you
know what are some of the practical
things that that we try to do
differently here so that this is
sustainable work where patients and and
our team can um have our access needs
met. Access needs being what anybody
needs for full and meaningful
participation.
So thank you to our panelists Olivia
Tyler, Lizzie Pat, and Sierra Miller. Um
while we watch the panel um you are
welcome to use the chat. Um, just as a
reminder, we we treat the chat as
equivalent to mouth words. We welcome
chat comments that keep the focus on the
panelists.
And so, uh, with that,
I will switch to our video.
Except I never remember to share sound.
Let's try that again.
Here
we go.
Burnout prevention and sustainability in
healthcare. Can I go off script? I had
an interesting idea.
Olivia Sierra and I,
we've worked in traditional healthc care
environments, but Lizzie has not.
I sort of like that's interesting to me.
I don't know in what way that
conversation like and it was like it's
like norms
that there were norms that you had to
unlearn versus like a fresh approach to
like
the creation of something. I don't know.
Does anybody have thoughts about
that?
I feel like a lot of the norms that make
working in healthcare difficult. A lot
of the like
structural aspects are very similar to
working at a lot of large corporations.
So I feel like there's some of them that
are some of the things of unlearning
is is going to be pretty universal in a
lot of different especially like large
systemic structured industries with a
big hierarchy.
>> That's very interesting. That makes
sense to me.
Last night I had a conversation with
Scott.
Never we guess we've never talked about
like the health care system dysfunction.
Like I guess he's like wait why do you
what do you what's wrong with the health
care system? It's like really anyway um
so um he's like I when you talk about
the health care system you are talking
about the business model of traditional
healthcare environments that is not
quote the health care system that is a
business model that you don't agree
with. I'm open to the idea but like
the business model is see as many
patients as possible.
I don't think that you can separate the
business model from the actual health
care being delivered. They're they're
they're one and the same. I I don't know
if this will get to say, but it it feels
similar to
being like, oh, you're focusing on
politics versus like
civil rights. like they're they're so
intertwined and
yeah, I don't I don't necessarily know
if if they can be separated, especially
given
that we,
how do I say this? Especially given that
a lot of the the business models are
profit focused often instead of um
instead of patient patient focused.
[snorts]
>> That's fair. traditional health care see
as many patients as possible
so that more revenue can come in
>> and to like make it actually to for the
healthcare to be patient focused the
business model has to be patient focused
as well
>> what would that look like
>> I think it's focusing on patients not
profits
>> concrete thing I would say
is that We see literally as few patients
as possible
in order to cover our expenses.
Other than that, we're trying to get
people appointments when they need them,
right? Like we're focusing on like bare
minimum number of appointments. The
schedule is set up that way. Sometimes
we end up seeing more like we were
talking about before. Um but that's the
structure. It's not how many patients
can we fit in the schedule. Like that is
a structural difference that I think
impacts my mental health
and is probably good for patients.
Sierra's thesis is that like if we think
about like the sustainability
of
working in health care, patient focused
healthcare feels better to deliver.
>> I think having like patients
the community and like direct care staff
being
intimately involved in like the creation
of the business model is also a really
important important part of that. Um
because otherwise you don't know what
patient care looks like if there's only
people who aren't ever interacting with
patients deciding that.
>> Totally.
Are there other aspects of like
traditional healthc care delivery or
like traditional corporate delivery that
anyone else has had to unlearn?
Olivia, Lizzy, anything you want to
share in that regard?
Well, I don't think it's possible to
have um patient centered care if you're
also if you're not taking care of your
staff
because they don't have the bandwidth or
they'll have the bandwidth for a certain
amount of time and then they're in
burnout and they're running on empty and
it's hard to take care of your people
when you're not taking care of your
staff.
So,
>> totally. And like I remember in
traditional healthcare
there was this narrative like people
were talking about how like you know to
heal a person you must be a person and
work life balance and mindfulness and it
was all like you as the individual you
need to do self-care and like then you
can be a good clinician. It's like the
system is actively hurting me right now.
Mhm.
>> And so I think that to your point, it's
the system.
>> Yeah.
>> Taking
it's taking care of the people in it
which includes
patients and includes
clinicians and everyone who works in the
system.
Yeah, it seems like and I think that it
goes across the board the companies or
practices or
if if they're if they've worked in every
aspect of
the system, then they can at least
understand where everybody's coming from
and be able to show up in a different
way. It seems like if to be successful
and to for everybody to be happy, you
have to have experience in each
department of your practice or each, you
know, it's like even in restaurants. You
know, the the restaurants that are most
successful are run by the folks who know
how each aspect of a restaurant works.
Like I've washed the dishes, I've made
the food, I've served the food, I've
received the food. You know, it's it
doesn't work if you don't like, you
know, you can't run a successful
business if you don't know how how each
part works.
>> Totally.
>> And I think that goes for healthcare and
school systems.
>> Yeah. So like breaking down silos like
within an organization.
>> Yeah.
I think that's why having boards is such
an important thing whether that's like a
board of directors or advisory boards
like having if if if we can't
necessarily expect one person to have
the experience of all of those different
positions
um having bringing all those people
together to kind of mutually make make
those decisions. Totally like one of the
most valuable
aspects of
having a you know a board of directors
and an advisory board is like the
questions people ask. You're like why
are you doing it that way or like have
you thought of this? It's just the idea
of like lots of brains bringing lots of
perspectives and lots of like individual
zones of genius that all contribute
in the most beneficial way to the whole
community.
Lizzie, what's coming up for you? Yeah,
I've been thinking a lot about access
needs and how I feel like our team and
our model that's a pretty
um
centralized focus of where we start
about like what are our teams access
needs, what are our provers access
needs, the staff's access needs and then
um also we look at what our our patients
access needs and getting feedback from
them. We're kind of building
this ship all together.
Um, like with all of our brains working
together and
also working through conflicting axis
needs and things like that, I don't
think that the traditional models um
really start in that spot. And um yeah,
and also we look at our team and realize
that it's not all about
productivity and
just
grinding yourself down every day. That
that isn't sustainable. So what system
can we create for the long term
>> for everyone? Yeah.
It's almost like when you think about
the beginning like the beginning of
being a team. Um, so like
2023,
right? So like what did we do? The first
thing we did was we like we wrote our
employee handbook together,
right? Like that was that was really
cool of like the really unique
like so like beginning with access needs
also beginning with culture.
I don't know that that I mean also I've
never been part of a startup before so I
don't know if it's like unique to our
healthcare environment versus like the
opportunity to like start fresh like can
you start fresh at any time or can you
only start fresh at the very beginning
and you like want to do it well I don't
know
I was just thinking about that too Mel
because I like
I think all of us have started at a
little bit different times times in the
organization, but all all of us has kind
of been here like you were saying Mel in
this like startup phase of like creating
a lot of this stuff. So, we've all been
here for
creating the employee handbook and
creating processes and that type of
stuff. And I wonder
I guess I wonder how different that is
to somebody coming in newly into a role
where that's already been created
because it's not a startup. We're not
starting from scratch. Um,
>> we should ask Reagan,
>> right? Like that would be like that
that'd be a really interesting future
brain club, right? Because like we have
systems. They work in a certain way. And
like yes, we I but I think that like
part of the system that we created is to
Lizz's point, it's still oriented around
access needs, which is very
individualized. So like the predictable
system is to be individualized according
to someone's access needs.
and to be like invited to reflect the
most access needs. Like that's what I I
mean it'd be interesting to see what
Reagan would say.
>> And I think that's another component
that we have too of when we reflect on
our access needs, we see does the system
need to shift at all any of our systems.
And I think that's pretty unique too
that other organizations
the systems typically don't shift as
easily or as fast based on fluctuating
or different access needs, right? And
like some of that is intentionally
staying small.
Like I don't want to be a health
network.
I I have no I have no interest in that
because I I want to at any given time I
want to be able to like change a
workflow or like shut it all down
because I think to Olivia's point like
our staff having our access needs is
actually the most important thing to me
and like that like so it's inevitable
you know we care about patient access
needs we care about staff access needs
and it is inevitable that those are
going to conflict and we're going to
transparently name those things like I
have the kind of brain that I cannot
have the phone ringing while I'm seeing
patients and like it's it's always been
that way and so the phone does not ring.
Um, right? Like that's just how it is
and I'm not I'm not going to quote
compromise on that because it's my job
to keep my brain working
because because now that I know that as
an access need and like I think that's
that's okay. Or I was talking with
Reagan this morning and she's like,
"Well, in kid connections, people are um
they're like saying that they are having
a hard time connecting with their
match." I might edit this out, but like
hard time connecting with their match
because they're in different time zones.
So like, what do I do? Like
this is a free community program.
We actually do not have capacity to
customize the time zone. That's This is
a manual thing that a human is doing
times
366
sweet little loves. We do not have
capacity. We're beyond capacity to do
any other filtering. Um so like I think
it's okay to name those things.
So I think that like the traditional
I mean maybe the traditional healthcare
environment certainly a lot of like
traditional customer serviceoriented
businesses around like the customer is
always right and we're going to like
bend over backwards to please quote the
customer and like I think that that is
often incompatible with what Olivia has
observed around taking care of staff.
like the customer i.e. the patient um
the patient may like you know they they
they may want something that is
incompatible
with staff access needs and capacity and
like we draw a line in the sand. I don't
know that that happens everywhere.
I I think that um that's part of why
all of our job roles have been like
co-determined by the organization's
needs and the person's like or and and
the employees like desires and things
that give them dopamine and access
needs. and
having
h having that co-creation process really
makes I think employees kind of go
through and learn about our access needs
and identify them and the organization
to really understand the access needs of
all it all of its employees to be able
to meet them. That makes me think about
Olivia, you and I were talking about
this before like culturally and I think
like we talk about this in trainings for
employers, but it's so important that
when there is a breakdown, we assume
that this relates to unmet access needs,
whether that is a a you know, a
breakdown with a patient in a
communication situation or a breakdown
in a task or or whatever. Um, I I I
think that's
That's a pretty important part of of of
culture. Um, you know, when I think
about like showing up to other work
environments where there's like this
persecutory,
you know, you dropped the ball and you
know, why'd you do that thing and what's
wrong with you and like that whole thing
is so bad for health and let alone to
Lizz's point around like productivity
and performance and like all those
neuronormative constructs like those
things suffer also when you come to a
toxic environment. where you're being
criticized and
made to feel less than.
Also thinking about like um
like if you've if most of your needs are
not met and what might seem extreme to
us, somebody asking for something may
seem beyond our capacity to take care
of, but they're coming from a place of
maybe not even having any of their needs
met. So what we may be asked for may
seem extreme, but to them it's just
another one of the things that they're
not able to,
you know, take care of or have support
around, you know,
>> totally. And it's always okay to ask for
what you need. It just may be the case
that we don't have capacity to deliver
it,
>> right?
>> But like that's part of culture, too.
>> Are there other like ways of working
that you think are important to note?
One thing I had written when kind of
previewing the prompts for today on the
more like
providing healthc care aspect was
that
at this organization I don't feel like
my job as a provider is to like provide
solutions to people but more to make a
team and
like mutually create both like treatment
plans but also like create the health
goals. And that feels very different
from
what what has been expected of my role
as a healthcare provider in other
organizations.
Um,
and and I think that goes to to to our
point of what patient centered care
looks like, but also like that the
the
safety and like
quality of life of of employees is is a
priority of the organization.
>> Yeah. And and also patient autonomy is
really important to us too. Like it goes
both ways. is like if I truly respect
patient autonomy, I'm not going to tell
you what to do.
Like that has always felt really
incompatible to me. And that's, you
know, it's very like patriarchal.
Is that the word? It's it's very
patriarchal and like No, that's not the
word I want. Um, it's very paternalistic
and like
feels like you're giving lip service to
the idea of patient autonomy and like I
really actually respect you to know
what's best for you. I'm here as your
guide. I'll make some suggestions. We
can co-create ways of implementing them,
but like it is not my I it's not my job
to tell you what to do. And in fact,
like it feels gross to tell people what
to do and it feels gross when people
tell me what to do. But also saying that
then it may it may be that they actually
would like you to tell them what to do
but they're not sure what that is.
Right? So it's like creating a space yes
of safety where you can explore what
your needs are and then that may lead to
you making a suggestion which is you
know also what the patient needs. But if
you're told what to do, what you're
it's not done in a safe way, right? I
guess that's the that's the key
>> because you may actually want I may
actually want you to tell me what to do,
but if it's not done in a way that feels
safe,
um then you're going to be shut down.
>> That's so interesting. I almost It's
interesting like as soon as I said the
thing, I realized that like I don't
think I really meant the thing that I
said. Um because like that what you said
is so true and like like Sierra and I we
did a group yesterday and like all the
people what we did for all the people
was we basically gave them a menu of
options. You could do this or you could
do that and some people depending on
like the level of you know depending on
the person and whether they you know I
thought that they would have capacity
for this they maybe got a third choice.
Um, and there's options and like I'll
give you a suggestion. If this were me,
I would do option A. That's why I gave
it to you first. Um, if this were me, I
would do option A. There are also these
things. Take your time and think about
it. You don't need to make a decision
now. Um, and I'm going to send you I'm
going to send you, you know, notes in
your format of your choosing and we can
talk about it again next time.
One of my phrases that I've been finding
I'm using almost every visit is um
here's the options. How are you feeling?
Do you want to decide now? I can decide
for you if you'd like or I can send you
a bunch more info and we can think about
it and either talk more in the future or
you can let me know. Um, and so like
giving like you're saying Olivia, um,
like g making it clear that like
you don't have to take on that whole
process if you don't want to. I can do
some of it. Um, and like make making
that clear and giving those options so
there's an explicit place where people
can ask for help making decisions and
that type of stuff.
The other thing about just like ways of
working
is like when I think about things that
have completely drained my battery in
other settings,
namely interacting with the electronic
medical record and writing progress
notes in the electronic medical record
and like all of that which I think is
common and there's you know lots of
literature that like this ruins
people's lives and leads to healthcare
provider burnout and lets them you know
leads to people quitting health care and
all of this. So like that's another way
in which we have designed our system
differently. We've designed that we you
know we we chart in a very flexible
system. We chart in different ways. Um
we change how we chart depending on you
know our need for novelty and dopamine
and and and all of that. And I think
like the biggest thing and you know when
I when I tell people about this and I
tell clinicians about this they're like
what you're doing what team based not
writing that there's multiple
[clears throat] people and like the
thing is in traditional primary care
that happened too you know like Olivia
you would start a note right and you'd
like you know you'd interview the
patient and you put the history that you
gathered at the top of the note you put
vital signs and then like the provider
would then like open up that note you it
was team based notew writing, but it
wasn't synchronous and it wasn't
flexible.
So, it's not radical.
It just looks really different that, you
know, I'm doing a thing and Sierra's
doing a thing and Lizzy's doing a thing
and Olivia's doing a thing and
it reduces the burden on any one person.
I think
>> the patients are doing part of that too
with previsit worms.
>> Yes, totally. It is a co-created
experience which decreases the burden on
everyone
and I think leads to patients actually
getting
their priorities addressed.
Yeah. The I think of the previsit form
as like a warm handoff.
You know, it's like the in between. It's
like uh setting setting the provider up
for success and setting the patient up
for success.
I love that. And it like allows for
processing time
>> and you know just like
multiple different ways of communicating
>> previsit form. I think that um
it also allows for a lot of autonomy
like when you decide what you want to
share when you want to share it before
the appointment and things like that.
Um, so that part is like built in to the
system too, which I think is really
nice.
>> Yeah. And like from a clinician's point
of view, it also supports my processing
time. It supports the information coming
in visually, which supports my access
needs. And it lets me think about and
organize my thoughts and like do some
research and do some thinking and make
notes for myself so that I go into that
appointment prepared. I think I I think
I'm a better doctor because I had I knew
what people wanted to talk about in
advance.
I agree. It's such a different
experience. And I think the only the
only reason that we get so many previsit
forms and the only way people are going
to fill them out is if there's that
transparency of this is why we do it.
This is this is why it's helpful for us.
This is why we need it. Um this is why
we need it for insurance documentation
or our access needs or whatever. And
that really especially for a group of
people who often really need the why to
be able to do something.
>> In other words, it feels arbitrary. It's
like why are you giving me the band
that's arbitrary? Because like I think
our patients they
a lot a lot of our patients I say most
of our patients like feel like they are
part of a community with us like they
want our access needs to be met in the
same we want their access needs to be
met. Like that's a
that's
Sounds like we're having some technical
difficulties.
I fixed it. Sorry.
I leaned on a key and it closed the app
and then I forgot what app I was in. All
right, here we go. This we might be
repeating some. So that part is like
built in
way people are going to fill them out is
if there's that transparency of this is
why we do it. This is this is why it's
helpful for us. This is why we need it.
Um this is why we need it for insurance
documentation or our access needs or
whatever. And that really especially for
a group of people who often really need
the why to be able to do something.
>> In other words, it feels arbitrary. It's
like why are you giving demand that's
arbitrary? Because like I think our
patients they
a lot a lot of our patients I say most
of our patients like feel like they are
part of a community with us like they
want our access needs to be met in the
same way that we want their access needs
to be met. Like that's a
that's a total sea change. Like that's a
total paradigm shift.
like, "Oh, I had no idea that you spend
hours writing notes when you're done
seeing me." Of course, I want to support
that process. like in traditional
um health care where you have the
provider has 15 minutes to see a patient
and I'm thinking about how much goes
involved um for us to see each patient
you know even like the previsit form
review giving the previsit form
reviewing the previsit form taking the
time to address the previsit form that
alone is more than 15 minutes you know
um so you know just even thinking about
that um the amount of time that each
patient gets time and attention in the
way we are trying to do things as
opposed to a provider in you know a big
hospital or a big health care facility
where they're like literally 15 minutes
15 minutes 15 minutes and you know no
wonder folks are everyone's feeling
disconnected and burnt out and not seen
or heard.
Yes, that's so interesting that you say
that because it's almost like just
thinking about to Lizz's point about
access needs
like this idea of the information comes
in asynchronously which allows me the
flexibility of using that information
according to my own access needs. So
like I can review a bunch of people's
stuff as a batch and organize their
information as a batch and you know in a
way that like when it was like patient
patient patient patient throughout the
day there there was no flexibility in
terms of when do you read when do you
think when do you organize when do you
take notes like when do you you know
formulate treatment plans like there was
no flexibility let alone also chart
review. Like I chart review, you know,
like
six to 12 people at a time and like look
up their labs and look up when they last
time they had a mamogram and like all
that stuff. We've designed for that.
Anything else that we haven't talked
about that you think is important
>> since the pandemic? I mean, when you're
told that um safe it's safer not to wear
a mask.
I mean, basically, we were told that
wearing a mask was is the wrong thing to
do. So if you're if the you know if if
you're being told that and you're
already showing up you're you're not
showing up because you're told not to
trust anybody it's like oh so this is
this is the e the easiest thing to do is
stay out of out of community out of
connection you know and
>> the safest thing sometimes.
>> Yeah. And now public health is not being
tracked or not being monitored. So it's
like
>> just falling apart
>> just collapsing entirely. That's so
interesting. I forgot about that. So
like 2020 it's like well um we don't
really know how CO has spread. So we
like you know here are these rules about
how you dawn and doth personal
protective equipment. Oh but we're not
going to give you enough of it. you're
going to like ration in your masks and
like all this stuff that like for me was
the initial breach of trust of like this
is a system that doesn't give a [ __ ]
about me.
And
>> now now now we are at a place like
Olivia says where you're just being told
like no it's fine
it's all fine
and a lot of folks were getting that
message before the pandemic. So the
folks that have been getting that
pandemic or that information since the
beginning of time that you're not
important or you're not valued, you
know, they're they're already not
trusting or not supported. And then the
pandemic hits and then there's more
folks that are like, "Oh, you don't care
about me?"
>> Yeah. So like you like and and and like
marginalized multiple marginalized
people who have this I mean we've like
we we've been covering this at brain
club around like just historical
mistrust of healthcare in particular
because of all the bad things that
healthcare has done to people. Um and
here we are.
I remember during the beginning of COVID
as a staff nurse,
no one on the floor was surprised the
hospital was not providing enough PPE.
Um it it was very like yeah, this is
this is how this is how the systems
work. Of course, they don't have enough
for staff to reuse them or whatever.
I remember going into the hospital and
they were like, "You can only use our
N95s under these conditions." And I'm
like, "It's an airborne illness. I would
like N95s under all the conditions." And
like, so having to like go figure out
how to like get your own N95s, like you
know, by N95 to come to the hospital
just like it was madness.
And like of course that impacts
your sense of feeling safe and like as
we know you need to be you need to feel
safe before you can do anything.
And now like society
>> all of the people
who are marginalized because of
disability plus all the other aspects of
identity who like
are getting the message that you're
dispensable. I don't care if you live or
die and let it rip.
So ways of working,
we have universal N95 mandates. Like
that's different from traditional
healthcare too because we care that you
don't get COVID when you come for
healthcare.
I'm also thinking about um uh how how we
reach out to each other in the community
about you know even the best way to
connect with you. Um, you know, like
that can change from day to day for a
lot of folks like having access to a
phone, having access to internet, having
access to even like using your voice,
you know, all these things are like on a
daily basis and
most of the world do not get the
opportunity to even have that
conversation.
>> Yeah. um and how that's how people
become disconnected from community and
how like get lost in the shuffle,
>> right? So, people don't hear from
>> readily that we have to figure out ways
of bridging those gaps.
>> Um and that's, you know, often relating
to like if you don't have your basic
needs met, you know,
>> community feels like a luxury. Mhm.
>> Yeah.
>> And you then like you don't reach out
until you're in crisis.
>> And it definitely seems like America
American culture on the whole is like
you don't trust anybody.
So like add that add that to on top of
everything else. Like you grow up in a
world in a society where your your your
thought your neighbors are not your
friend and you we're all here only to
survive by ourselves and that's you know
Yeah. So you're you're not only
unlearning, you're like you're just
unlearning so much
>> when it's safe
to unlearn. And like
that's a big if.
Like especially under times of
uncertainty and upheaval
like there's that tendency to like
withdraw and like hunker down and
separate
which makes sense
and is really hard. Maybe one more thing
I might share is like very different
here compared with
any healthcare environment I've been in
is like I genuinely feel like I'm part
of our healthcare community. Like I I I
feel that and so that translates into so
many different things. So, not only is
it to Sierra's point about like patients
being aware of our access needs as staff
and like genuinely wanting to support
them in the ways that we support our
patients access needs. There's like that
and there's just um it lowers the bar
lowers the barrier
for me to feel like I can be transparent
about my access needs. Like I am a
human. I am showing up today. I have
access needs. I'm showing up with this
energy and I am aware of the way that my
energy impacts other people and I'm
going to own that. And like these are
all cultural ways of being in space with
other people that I've never seen done
in healthcare that I find helpful.
Thank you again to Sierra, Lizzy, and
Olivia for this conversation.
Um, I also really appreciate the
comments in the chat with like just lots
of examples of conflicting access needs
and I think that um
I just want to name that, right? Like
that's the point the transparency around
this is my access need, this is my
capacity. So like Albar, I'm seeing your
comment that like you have not been
provided multiple paths to
participation. You have been given one
path and that path is not a fit for your
access needs and so you are beyond
capacity to do that thing in that way.
um if there had been multiple paths to
participation, there may have been one
that that worked. And there's, you know,
a couple of other examples in the chat
as we've been going. But I think that
like to me that really stands out around
like capacity based boundaries which are
different than preferencebased
boundaries, right? Like I don't prefer
to, you know, make a phone call to make
an appointment. Yeah. Um I am beyond
capacity to make that phone call. It's
different. It feels different.
Um, and so, uh, with that, thank you all
so much for being here and thinking
about these topics with us. And, um,
we look for for those of you who are
coming to the the book launch event next
week. We'll see you next week. And
otherwise, um, regular brain club will
resume the week after on Tuesday,
September 1st.
Thank you everybody. Good night.
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